Dizzy? Clumsy? Bruise easily? Joint pain? Feel faint? Get tired a lot? Feel anxious?
You might have Ehlers Danlos Syndrome (Hypermobile Type) or hypermobility – a genetic connective tissue disorder.
Have a look at this article posted by Hypermobility Connect recently. It explains how something as seemingly simple as hypermobility can give people a lot of health problems.
What’s more, as common as it is (20% of the population have hypermobility) it is poorly recognised by the medical profession as the cause of many issues.
Hypermobility is an impairment of collagen in connective tissue, so it doesn’t just affect joints. Ehlers Danlos Syndrome Hypermobile Type (or Hypermobility Syndrome) is the name of the condition where hypermobility results in health issues.
It is not rare, it is just rarely diagnosed.
One of the global specialists in Ehlers Danlos Syndrome (EDS), Dr Alan Pocinki, has a great video on how EDS can manifest itself. So if you could do some wacky stuff with your joints as a kid (and maybe still can!) and are now suffering from joint/muscle pain, lots of fatigue, fluttering chest sensations, breathlessness or have been told you “just have anxiety” then please also take some time to read and listen to what’s in this post – “Pushing through Fatigue“.
Many people go through frustrating and plain wrong diagnoses before they get diagnosed with Ehlers Danlos Syndrome (I was one of them).
I have had to advocate for myself all the way and it just shouldn’t be that hard.
One of the aims of this blog is to raise awareness of Ehlers Danlos Syndrome (Hypermobility Type) and Dysautonomia – one of it’s partners in crime.
If any of what you read sounds like you, go to your doctor and push to get seen by a specialist. Please also share this post so we can spread the word.
A correct diagnosis could be waiting for you.