What it’s like living with dysautonomia and EDS – what it means to be a spoonie and manage your day according to spoons. Note: nothing to do with spontaneous acts of spooning – sorry to disappoint! 🙂
Spoonies I’m in some strife and I need your help with my pacing strategies.
This is your call to action….. (Everyone else, strange ‘spoonie’ and ‘spoon’ references will become clearer….)
Life these last few weeks has been ridiculous. This crazy, stupid, mad woman has been cramming just too much in. My pacing strategies have gone completely out the window. And for what? To try and earn some god damn money. Damn it. Continue reading Living with Dysautonomia and EDS – Chapter 8 “What it Means to be a Spoonie”
How to find balance in life – “Why Breakfast Events are History”
I am a mother. I am a wife. I am a freelance consultant. I am actually quite a lot of bloody stuff. Now with a health doo dah thrown in.
As I continue to understand this thing I have, I continue to make strides (in a somewhat haphazard way) to battle against the old expectations of myself and to carve out the new me. Whatever that is. This week was another one of those weeks where I continued to make progress in rewriting my book of life…specifically my work life.
It was another one of those ‘old expectations’ weeks. The ‘old chestnut’ that pops up a lot. Continue reading Finding Balance in the Madness – Chapter 2 “Breakfast Events are History”
How to get a new life – “What Could Freedom to Choose Look Like to You?”
One of things I’ve been forced to do with this thing I have is slow down.
A hard ask for someone who has spent all her life on the go, applying herself with gusto to just about anything and everything.
Unbeknowns to me I had literally been living my life on adrenaline – I loved being busy, always been like it, never knew anything different, until now.