My trials and tribulations of finding balance in life – “Confession: I’m Mad about My Phone!”
Is your smart phone or tablet ruling your life? How joined at the hip are you? Go on be honest.
Well they have made quite a big impression on my life and our family life as I am sure they have yours. And they definitely contribute toward a day with too much in it and a body/mind in overload. Here’s us…
Continue reading Finding Balance in the Madness – Chapter 3 “I’m Mad about my Phone”
How to find balance in life – “Why Breakfast Events are History”
I am a mother. I am a wife. I am a freelance consultant. I am actually quite a lot of bloody stuff. Now with a health doo dah thrown in.
As I continue to understand this thing I have, I continue to make strides (in a somewhat haphazard way) to battle against the old expectations of myself and to carve out the new me. Whatever that is. This week was another one of those weeks where I continued to make progress in rewriting my book of life…specifically my work life.
It was another one of those ‘old expectations’ weeks. The ‘old chestnut’ that pops up a lot. Continue reading Finding Balance in the Madness – Chapter 2 “Breakfast Events are History”
“The Goldilocks Plan” to living with dysautonomia and EDS.
Living with dysautonomia and EDS has been a massive rollercoaster.
The downs have been many but I wouldn’t have made it through the last two years without the ups.
The ups are simply those gorgeous people around me who have helped keep me sane and to feel cared for. Numero uno, my husband (who does just about everything there is to do around here), then there are my children (for forever giving me something to laugh about and for just loving their mum), my family (for being there during the tough times and helping me in whatever way I needed it) and, finally, my friends (the rock stars who have stuck by me and not put me in the ‘too hard’ basket).
This last year has also been about developing what I’ve now called my Goldilocks recovery plan. So named because quite simply it’s been about finding out what’s ‘just right’ for me. There has been much trial and error!
Here’s the list of my do’s and don’ts which hopefully should help others suffering from dysautonomia and EDS. Continue reading Living with Dysautonomia and EDS – Chapter 6 “The Goldilocks Plan”
How to get a new life – “What Could Freedom to Choose Look Like to You?”
One of things I’ve been forced to do with this thing I have is slow down.
A hard ask for someone who has spent all her life on the go, applying herself with gusto to just about anything and everything.
Unbeknowns to me I had literally been living my life on adrenaline – I loved being busy, always been like it, never knew anything different, until now.
What living with dysautonomia and EDS feels like – “Me Wiring is Off”
When things went wrong 18 months ago, it felt like a malfunction, like the machine went wrong or like the accelerator got left in the on position. Well yesterday I got validation this is indeed correct. It’s called neurally mediated hypotension. Da dah! Continue reading Living with Dysautonomia and EDS – Chapter 5 “Me Wiring is Off”
How to find more balance in your life – by “Meditating like a Mad Woman” of course!
If you had asked me two years ago what I thought about meditation, you would have got a scoff, a sniff and even perhaps an eyeball roll.
I had had some experience of trying it before but I often came out wondering what visualising, body scanning and breathing actually did for me (other than the obvious!!).
What I hadn’t appreciated was the calm I often felt during and after doing it. Me thinks now my head was probably just buzzing a bit much for me to see the wood for the trees!! Continue reading Finding Balance in the Madness – Chapter 1 “Meditating like a Mad Woman”
What living with dysautonomia and EDS feels like – “The Poo Truck”
My wham bam health issues appeared in November 2014. However, looking back, before my ‘tsunami’ of symptoms hit, a slow trickle of odd symptoms had appeared. I’d been under quite a bit of stress from a job for a period of 6 months and I had a few odd, isolated bodily symptoms occur (which I can now recognise as the early warning signs). I had weird aches in my hands, I was thirstier than normal, I was wired and tired, I got the shakes when under pressure and I started getting weird nightmares on top of insomnia (Dennis the Menace flying spider kind of nightmares). I then experienced the ‘oh god I feel shit I must be unfit’ after pilates (come on?) and I had my first proper almighty so-called panic attack (an ambulance job). But many of these were simply explained away as stress related reactions.
Then I sealed my fate by visiting some hot springs for the day in late November 2014. Continue reading Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”