What it feels like living with dysautonomia and EDS – like I’ve joined “Adrenergics Anonymous”!
Adrenaline, my adrenergic tendencies and I have become very acquainted. It’s my side kick in life.
It’s a bit like your favourite tipple at the pub when someone asks ‘what’s your poison?’. You lap it up at the time but suffer from the effects of it big time when you’ve done it to excess. And having had to live with the excess side of things since 2014, when my body just went completely haywire, I’ve become quite knowledgeable about its impact.
Continue reading Living with Dysautonomia and EDS – Chapter 9 “Adrenergics Anonymous”
What it’s like living with dysautonomia and EDS – what it means to be a spoonie and manage your day according to spoons. Note: nothing to do with spontaneous acts of spooning – sorry to disappoint! 🙂
Spoonies I’m in some strife and I need your help with my pacing strategies.
This is your call to action….. (Everyone else, strange ‘spoonie’ and ‘spoon’ references will become clearer….)
Life these last few weeks has been ridiculous. This crazy, stupid, mad woman has been cramming just too much in. My pacing strategies have gone completely out the window. And for what? To try and earn some god damn money. Damn it. Continue reading Living with Dysautonomia and EDS – Chapter 8 “What it Means to be a Spoonie”
What it feels like living with dysautonomia and EDS – “Dealing with the Invisible”
Frustrated. Angry. Disappointed. Bloody over it.
Woke up this morning not in the best mood (can you tell?). Too many expletives to mention exited my mouth. Husband has slunk off to a quieter place. Though he did make me a cup of tea first. All because of my invisible illness. Continue reading Living with Dysautonomia and EDS – Chapter 7 “Dealing with the Invisible”
How to get a new life – “What Could Freedom to Choose Look Like to You?”
One of things I’ve been forced to do with this thing I have is slow down.
A hard ask for someone who has spent all her life on the go, applying herself with gusto to just about anything and everything.
Unbeknowns to me I had literally been living my life on adrenaline – I loved being busy, always been like it, never knew anything different, until now.
This week, I would like to introduce you to Nikki Albert who runs the brainlessblogger blog. Nikki manages chronic migraines, fibromyalgia and major depressive disorder. Here’s her frank and insightful account of her story.
Continue reading Nikki Albert: Living well with chronic illness
This week I’d like to introduce Candice Mes. Candice lives in South Africa and currently works as an Occupational Therapist (OT). She’s walked a long and, at times, very trying road with her health and tells us how she lives well with chronic illness here.
Continue reading Candice Mes: Living well with chronic illness
Please welcome Shawn Bethea to the Living Well series!
Shawn suffers from Ulcerative Colitis and has lived with it for pretty much all her young life (she first started getting sick when she was around 11 years old).
Continue reading Shawn Bethea: Living well with chronic illness