Tag Archives: Migraines

Stories about migraine symptoms for those with dysautonomia

Living with Dysautonomia and EDS – Chapter 14 “My Last Flutter with Too Much Fun”

Another instalment from a day in my life of living with dysautonomia and EDS!

This week is an anniversary of sorts.  An anniversary that coincides with a famous horse race, The Melbourne Cup.

It marks the time I last skipped in front of the TV!

Here’s a recap from that memorable day in November 2015….

Continue reading Living with Dysautonomia and EDS – Chapter 14 “My Last Flutter with Too Much Fun”

Living with Dysautonomia and EDS – Chapter 11 “My Daily Specials”

Living with dysautonomia and EDS – “My Daily Specials of Dreams, Hangovers and Fatigue”

This is me. The dreamer. The hungover. The fatigued. Daily specials on my menu of life. Here’s a taste…

Every morning, to varying degrees depending on how busy my day was previously, I wake in a fog. A pea soup kind of fog. Feeling like I’ve been somewhere half the night.

In another mad dream. With people I don’t know, writing the story as I go. Continue reading Living with Dysautonomia and EDS – Chapter 11 “My Daily Specials”

Living with Dysautonomia and EDS – Chapter 9 “Adrenergics Anonymous”

What it feels like living with dysautonomia and EDS – like I’ve joined “Adrenergics Anonymous”!

Adrenaline, my adrenergic tendencies and I have become very acquainted.  It’s my side kick in life.

It’s a bit like your favourite tipple at the pub when someone asks ‘what’s your poison?’.  You lap it up at the time but suffer from the effects of it big time when you’ve done it to excess.  And having had to live with the excess side of things since 2014, when my body just went completely haywire, I’ve become quite knowledgeable about its impact.

Continue reading Living with Dysautonomia and EDS – Chapter 9 “Adrenergics Anonymous”

Just for a bit of sleep

Not my usual buoyant self.  Woken from sleep.  Mind you it was 1am in the morning and my patience was wearing thin.  Freddie Kruger was in the house.

justforabitofsleep

Finding Balance in the Madness – Chapter 2 “Breakfast Events are History”

How to find balance in life – “Why Breakfast Events are History”

I am a mother.  I am a wife.  I am a freelance consultant.  I am actually quite a lot of bloody stuff. Now with a health doo dah thrown in.

As I continue to understand this thing I have, I continue to make strides (in a somewhat haphazard way) to battle against the old expectations of myself and to carve out the new me.  Whatever that is.  This week was another one of those weeks where I continued to make progress in rewriting my book of life…specifically my work life.

It was another one of those ‘old expectations’ weeks.  The ‘old chestnut’ that pops up a lot. Continue reading Finding Balance in the Madness – Chapter 2 “Breakfast Events are History”

Living with Dysautonomia and EDS – Chapter 7 “Dealing with the Invisible”

What it feels like living with dysautonomia and EDS – “Dealing with the Invisible”

Frustrated.  Angry.  Disappointed.  Bloody over it.

Woke up this morning not in the best mood (can you tell?).  Too many expletives to mention exited my mouth.  Husband has slunk off to a quieter place.  Though he did make me a cup of tea first.  All because of my invisible illness.  Continue reading Living with Dysautonomia and EDS – Chapter 7 “Dealing with the Invisible”

Living with Dysautonomia and EDS – Chapter 6 “The Goldilocks Plan”

“The Goldilocks Plan” to living with dysautonomia and EDS.

Living with dysautonomia and EDS has been a massive rollercoaster.

The downs have been many but I wouldn’t have made it through the last two years without the ups.

The ups are simply those gorgeous people around me who have helped keep me sane and to feel cared for.  Numero uno, my husband (who does just about everything there is to do around here), then there are my children (for forever giving me something to laugh about and for just loving their mum), my family (for being there during the tough times and helping me in whatever way I needed it) and, finally, my friends (the rock stars who have stuck by me and not put me in the ‘too hard’ basket).

This last year has also been about developing what I’ve now called my Goldilocks recovery plan.  So named because quite simply it’s been about finding out what’s ‘just right’ for me.  There has been much trial and error!

This last year has been about developing what I've now called my Goldilocks recovery plan. Click To Tweet

Here’s the list of my do’s and don’ts which hopefully should help others suffering from dysautonomia and EDS. Continue reading Living with Dysautonomia and EDS – Chapter 6 “The Goldilocks Plan”