Tag Archives: Invisible Illness

Stories about the impact of invisible illness

How to Manage Change when the Future is Unknown

Change isn’t easy, especially when it’s foisted on you and the future is unknown – Here’s “How to Manage Change when the Future is Unknown”

I have written the following post in collaboration with Sam Moss of My Medical Musings and I have referenced some of the posts that Sam has written there.  It makes for powerful reading in terms of what you can do to better manage your personal circumstances when you find yourself in a place of despair.  Her learnings will also help anyone undergoing change when that change is occurring through choice.

Here’s some of her story.

Continue reading How to Manage Change when the Future is Unknown

How to Work with Chronic Illness

“How I Found a Way to Work Despite Chronic Illness”

To look at me is to look at anyone else.

I look like a typical 40 something with the confidence you would expect of someone who has been in her profession for 25 years. If you are talking with me, you would likely also make the assumption that I hold down a full time job. Like everyone else who looks and sounds a bit like me.

Except, I can’t.

To look at me is to look at anyone else. Or is it? Click To Tweet

I share my life with a chronic illness.

Continue reading How to Work with Chronic Illness

Living with Dysautonomia and EDS – Chapter 11 “My Daily Specials”

Living with dysautonomia and EDS – “My Daily Specials of Dreams, Hangovers and Fatigue”

This is me. The dreamer. The hungover. The fatigued. Daily specials on my menu of life. Here’s a taste…

Every morning, to varying degrees depending on how busy my day was previously, I wake in a fog. A pea soup kind of fog. Feeling like I’ve been somewhere half the night.

In another mad dream. With people I don’t know, writing the story as I go. Continue reading Living with Dysautonomia and EDS – Chapter 11 “My Daily Specials”

Living with Dysautonomia and EDS – Chapter 7 “Dealing with the Invisible”

What it feels like living with dysautonomia and EDS – “Dealing with the Invisible”

Frustrated.  Angry.  Disappointed.  Bloody over it.

Woke up this morning not in the best mood (can you tell?).  Too many expletives to mention exited my mouth.  Husband has slunk off to a quieter place.  Though he did make me a cup of tea first.  All because of my invisible illness.  Continue reading Living with Dysautonomia and EDS – Chapter 7 “Dealing with the Invisible”

Sheryl Chan: Living well with chronic illness

Sheryl Chan runs “A Chronic Voice”, a health, wellness and chronic illness blog.  She shares her experiences in hope that it raises awareness on silent disabilities, and to let others know they are not alone in this.  Here’s a little more on her thoughts about living well with chronic illness.

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Kamilah Howard: Living well with chronic illness

This week I would like to introduce you to Kamilah Howard from Anchoredinhealth.com.

Kamilah has asthma and gluten intolerance. Her asthma symptoms are mostly exercise-induced, which is something she does almost every day. Her gluten intolerance really affects what she eats day to day, but it’s very manageable through a gluten free diet.

Continue reading Kamilah Howard: Living well with chronic illness