What living with dysautonomia and EDS feels like – introducing…”Grog the Head”
A friend of mine who made a daily appearance for 6 months, stopped for 2 months and has now come back again is Grog, as I have now named him (aka bear with a sore head). When he’s in full swing he’s like the hangover (with full on banging migraines) that won’t go away and, over the last 12 months, has become a pretty consistent member of my crew. It seems it’s all part of the delightful bag of tricks this weird condition brings. Continue reading Living with Dysautonomia and EDS – Chapter 4 “Grog the Head”
How to find more balance in your life – by “Meditating like a Mad Woman” of course!
If you had asked me two years ago what I thought about meditation, you would have got a scoff, a sniff and even perhaps an eyeball roll.
I had had some experience of trying it before but I often came out wondering what visualising, body scanning and breathing actually did for me (other than the obvious!!).
What I hadn’t appreciated was the calm I often felt during and after doing it. Me thinks now my head was probably just buzzing a bit much for me to see the wood for the trees!! Continue reading Finding Balance in the Madness – Chapter 1 “Meditating like a Mad Woman”
My trials and tribulations of exercising with dysautonomia and EDS – “Bite Sized Cardio”
After ditching cardio for 3 weeks to try to allow this body to calm down (with mixed and not very successful results I have to say), I resolved to do SOMETHING. After all the pain my bloody leg muscles went through in Sept and Oct when I restarted exercise I can’t put myself in a position where I have to go through that again. Continue reading Exercising with Dysautonomia – Part 2 “Bite Sized Cardio”
My trials and tribulations of exercising with dysautonomia and EDS – “The Perpetual Cyclist”
What is it with tourists?
As I was cycling along today (which I am meant to do everyday – hmm subject of another post) the inevitable happened. A nice looking couple (obviously from my home country England, judging by the accents) decided to ask me for directions to the beach.
Me – who obviously just looks like I’m out for a morning meander on my cruiser bike rather than the huffing, puffing lard arse that I was feeling. Continue reading Exercising with Dysautonomia – Part 1 “The Perpectual Cyclist”
What living with dysautonomia and EDS feels like – “The Poo Truck”
My wham bam health issues appeared in November 2014. However, looking back, before my ‘tsunami’ of symptoms hit, a slow trickle of odd symptoms had appeared. I’d been under quite a bit of stress from a job for a period of 6 months and I had a few odd, isolated bodily symptoms occur (which I can now recognise as the early warning signs). I had weird aches in my hands, I was thirstier than normal, I was wired and tired, I got the shakes when under pressure and I started getting weird nightmares on top of insomnia (Dennis the Menace flying spider kind of nightmares). I then experienced the ‘oh god I feel shit I must be unfit’ after pilates (come on?) and I had my first proper almighty so-called panic attack (an ambulance job). But many of these were simply explained away as stress related reactions.
Then I sealed my fate by visiting some hot springs for the day in late November 2014. Continue reading Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”
What living with dysautonomia and EDS feels like – “Supercharged out of my Head”
Yup you guessed it, another shitful attack. God, this body is a pain in the neck.
My meds were changed 3 weeks ago because of adrenaline issues, I had reduced my meetings and the intensity of my exercise program and was doing really well.
Then I changed something. Moved my usual morning exercise to the evening last night, evidently when the impact of my glory wonder drugs were at their lowest, and had a sleep from hell. Continue reading Living with Dysautonomia and EDS – Chapter 1 “Supercharged”