Tag Archives: Fibromyalgia

Stories about fibromyalgia symptoms for those with dysautonomia, Ehlers Danlos Syndrome or a chronic health condition

Do I have Ehlers Danlos Syndrome (EDS)?

Dizzy? Clumsy? Bruise easily?  Joint pain? Feel faint? Get tired a lot?  Feel anxious?

You might have Ehlers Danlos Syndrome (Hypermobile Type) or hypermobility – a genetic connective tissue disorder.

Continue reading Do I have Ehlers Danlos Syndrome (EDS)?

Living with Dysautonomia and EDS – Chapter 5 “Me Wiring is Off”

What living with dysautonomia and EDS feels like – “Me Wiring is Off”

When things went wrong 18 months ago, it felt like a malfunction, like the machine went wrong or like the accelerator got left in the on position.  Well yesterday I got validation this is indeed correct.  It’s called neurally mediated hypotension. Da dah! Continue reading Living with Dysautonomia and EDS – Chapter 5 “Me Wiring is Off”

Living with Dysautonomia and EDS – Chapter 4 “Grog the Head”

What living with dysautonomia and EDS feels like – introducing…”Grog the Head”

A friend of mine who made a daily appearance for 6 months, stopped for 2 months and has now come back again is Grog, as I have now named him (aka bear with a sore head).  When he’s in full swing he’s like the hangover (with full on banging migraines) that won’t go away and, over the last 12 months, has become a pretty consistent member of my crew.  It seems it’s all part of the delightful bag of tricks this weird condition brings. Continue reading Living with Dysautonomia and EDS – Chapter 4 “Grog the Head”

Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”

What living with dysautonomia and EDS feels like – “The Poo Truck”

My wham bam health issues appeared in November 2014. However, looking back, before my ‘tsunami’ of symptoms hit, a slow trickle of odd symptoms had appeared.  I’d been under quite a bit of stress from a job for a period of 6 months and I had a few odd, isolated bodily symptoms occur (which I can now recognise as the early warning signs).  I had weird aches in my hands, I was thirstier than normal, I was wired and tired, I got the shakes when under pressure and I started getting weird nightmares on top of insomnia (Dennis the Menace flying spider kind of nightmares).  I then experienced the ‘oh god I feel shit I must be unfit’ after pilates (come on?) and I had my first proper almighty so-called panic attack (an ambulance job).  But many of these were simply explained away as stress related reactions.

Then I sealed my fate by visiting some hot springs for the day in late November 2014.  Continue reading Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”

Nikki Albert: Living well with chronic illness

This week, I would like to introduce you to Nikki Albert who runs the brainlessblogger blog.  Nikki manages chronic migraines, fibromyalgia and major depressive disorder.  Here’s her frank and insightful account of her story.

Continue reading Nikki Albert: Living well with chronic illness

Donna Grant: Living well with chronic illness

This week, I would like to introduce you to Donna Grant who lives with Fibromyalgia and Chronic Lyme Disease and writes about her experiences on her February Stars blog.  Here she talks about her experiences and living well with her chronic illness.

Continue reading Donna Grant: Living well with chronic illness

Charlotte Wells: Living well with chronic illness

This week, I would like you to meet Charlotte Wells from charlottedebs.com.  Charlotte has been diagnosed with fibromyalgia, chronic pain. ME/CFS and Myoclonic Seizures. She talks here about how she does her best to live as well as she can with her chronic illnesses.

Continue reading Charlotte Wells: Living well with chronic illness