What it feels like living with dysautonomia and EDS – “Dealing with the Invisible”
Frustrated. Angry. Disappointed. Bloody over it.
Woke up this morning not in the best mood (can you tell?). Too many expletives to mention exited my mouth. Husband has slunk off to a quieter place. Though he did make me a cup of tea first. All because of my invisible illness. Continue reading Living with Dysautonomia and EDS – Chapter 7 “Dealing with the Invisible”
How to get a new life – “The Unwanted House Guest”
I love a bit of Rumi and this poem really resonated with me given I have my own version of an unwanted house guest that forced me to change my life and slow down. Take a moment to read it: Continue reading How to Get a New Life – Chapter 1 “The Unwanted House Guest”
What living with dysautonomia and EDS feels like – “The Poo Truck”
My wham bam health issues appeared in November 2014. However, looking back, before my ‘tsunami’ of symptoms hit, a slow trickle of odd symptoms had appeared. I’d been under quite a bit of stress from a job for a period of 6 months and I had a few odd, isolated bodily symptoms occur (which I can now recognise as the early warning signs). I had weird aches in my hands, I was thirstier than normal, I was wired and tired, I got the shakes when under pressure and I started getting weird nightmares on top of insomnia (Dennis the Menace flying spider kind of nightmares). I then experienced the ‘oh god I feel shit I must be unfit’ after pilates (come on?) and I had my first proper almighty so-called panic attack (an ambulance job). But many of these were simply explained away as stress related reactions.
Then I sealed my fate by visiting some hot springs for the day in late November 2014. Continue reading Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”
Introducing you to Kami Lingren from Living Grace who is a truly beautiful soul. Kami has been diagnosed with Lyme and a handful of other diagnoses, with dizziness, head pain, bone and joint pain as the most debilitating symptoms. At its worst, her list of symptoms from her illness had grown to nearly 80, which she know so many others can relate to. Thankfully she’s been finally improving this year and her symptom list has become much smaller! Find out how she is living well with chronic illness by reading more…
Continue reading Kami Lingren: Living well with chronic illness
This week I would like to introduce you to Kamilah Howard from Anchoredinhealth.com.
Kamilah has asthma and gluten intolerance. Her asthma symptoms are mostly exercise-induced, which is something she does almost every day. Her gluten intolerance really affects what she eats day to day, but it’s very manageable through a gluten free diet.
Continue reading Kamilah Howard: Living well with chronic illness
I’ve been meaning to write about Kayla for some time. We connected a few months back but it’s taken me some time to sit down and do her justice! Kayla has lived with Chronic Fatigue Syndrome (CFS)/ME since she was 12 years old. Continue reading Kayla Kurin: Living well with chronic illness