Tag Archives: featured

Living with Dysautonomia and EDS – Chapter 14 “My Last Flutter with Too Much Fun”

Another instalment from a day in my life of living with dysautonomia and EDS!

This week is an anniversary of sorts.  An anniversary that coincides with a famous horse race, The Melbourne Cup.

It marks the time I last skipped in front of the TV!

Here’s a recap from that memorable day in November 2015….

Continue reading Living with Dysautonomia and EDS – Chapter 14 “My Last Flutter with Too Much Fun”

How to Manage Change when the Future is Unknown

Change isn’t easy, especially when it’s foisted on you and the future is unknown – Here’s “How to Manage Change when the Future is Unknown”

I have written the following post in collaboration with Sam Moss of My Medical Musings and I have referenced some of the posts that Sam has written there.  It makes for powerful reading in terms of what you can do to better manage your personal circumstances when you find yourself in a place of despair.  Her learnings will also help anyone undergoing change when that change is occurring through choice.

Here’s some of her story.

Continue reading How to Manage Change when the Future is Unknown

How Acceptance of my Illness Helped me Embrace my Life

Several years in the making, I’ve finally achieved acceptance of my illness and where I am.

It’s not until I fully embraced my health circumstances that I was able to live peacefully with them.

What is the Impact of Living on Too Much Adrenaline?

Are you running around on adrenaline, much like ‘roadrunner’ just running non stop?  Living on too much adrenaline?

Following my own rather large run in with adrenaline and the diagnosis of having dysautonomia and being hyperadrenergic (a-dren-err-gic – I still have problems saying it) I’ve become somewhat interested in the role it plays on the body and thought I would share some of what I know.  So here goes…. Continue reading What is the Impact of Living on Too Much Adrenaline?

Finding Balance in the Madness – Chapter 8 “How Not to Sweat the Small Stuff”

How often do you hear the phrase ‘don’t sweat the small stuff”?

Most heard at a point where you are doing exactly that. And, why? Because all perspective has simply gone flying out the window. You’re juggling too much. You’re in overwhelm. You don’t know which bit to jump on and tackle next.

Small stuff all of a sudden got big.

Continue reading Finding Balance in the Madness – Chapter 8 “How Not to Sweat the Small Stuff”

How to Work with Chronic Illness

“How I Found a Way to Work Despite Chronic Illness”

To look at me is to look at anyone else.

I look like a typical 40 something with the confidence you would expect of someone who has been in her profession for 25 years. If you are talking with me, you would likely also make the assumption that I hold down a full time job. Like everyone else who looks and sounds a bit like me.

Except, I can’t.

To look at me is to look at anyone else. Or is it? Click To Tweet

I share my life with a chronic illness.

Continue reading How to Work with Chronic Illness

Living with Dysautonomia and EDS – Chapter 13 “My Top 10 Countdown”

“My top 10 countdown for living with dysautonomia and EDS”

It’s been a few years since things went awry with this body of mine.  I’ve now got myself to a much better place but it’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and EDS!

So here are the “hits” for your enjoyment…

Continue reading Living with Dysautonomia and EDS – Chapter 13 “My Top 10 Countdown”