F**k It. I’m out.
Once upon a time (in 2016 to be exact), I had been sitting, pondering about officially launching this blog of mine. I had been holding off going public worrying about how it would affect the work I’d been doing. Thinking by some miracle my condition would pass (ha).
I didn’t want to look like a fraud (you know, I might roll over one day and be restored back to the manufacturer’s settings??). But realistically, I had been fooling myself thinking, at that point, that I could resume a “normal” working life. Whatever that was anymore. Dream on. My work had been suffering anyway. In fact, I had to completely rethink it.
Are you running around on adrenaline, much like ‘roadrunner’ just running non stop? Living on too much adrenaline?
Following my own rather large run in with adrenaline and the diagnosis of having dysautonomia and being hyperadrenergic (a-dren-err-gic – I still have problems saying it) I’ve become somewhat interested in the role it plays on the body and thought I would share some of what I know. So here goes…. Continue reading What is the Impact of Living on Too Much Adrenaline?
“My top 10 countdown for living with dysautonomia and EDS”
It’s been a few years since things went awry with this body of mine. I’ve now got myself to a much better place but it’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and EDS!
So here are the “hits” for your enjoyment…
Continue reading Living with Dysautonomia and EDS – Chapter 13 “My Top 10 Countdown”
My trials and tribulations of exercising with dysautonomia!
If you’re living with dysautonomia, you’ve probably been told to exercise to improve your predicament. However, it doesn’t always work out that way. Here’s my story of why I found exercising with dysautonomia hard.
Previous Spesh set me on a routine of daily cardio to grow my blood volume and recondition me and my muscles back to health. At least, that was the plan.
Here’s a bit of before and after of what has resulted: Continue reading Exercising with Dysautonomia – Part 3 – “Cardio is too Hardio”
Living with dysautonomia and EDS – “My Daily Specials of Dreams, Hangovers and Fatigue”
This is me. The dreamer. The hungover. The fatigued. Daily specials on my menu of life. Here’s a taste…
Every morning, to varying degrees depending on how busy my day was previously, I wake in a fog. A pea soup kind of fog. Feeling like I’ve been somewhere half the night.
In another mad dream. With people I don’t know, writing the story as I go. Continue reading Living with Dysautonomia and EDS – Chapter 11 “My Daily Specials”
My latest musings on living with dysautonomia and EDS that I shall call “The Rise and Fall of the Red Card!”
A tale of attempting silence by non verbal cues in my house… (Anyone that knows my house will know where this is going…)
Talking and laughing, the things that we all take for granted, are the things that I can no longer do a great deal of. Which is a complete shit because, hey, who doesn’t like doing those things? It’s called fun, right?
Continue reading Living with Dysautonomia and EDS – Chapter 10
What it feels like living with dysautonomia and EDS – like I’ve joined “Adrenergics Anonymous”!
Adrenaline, my adrenergic tendencies and I have become very acquainted. It’s my side kick in life.
It’s a bit like your favourite tipple at the pub when someone asks ‘what’s your poison?’. You lap it up at the time but suffer from the effects of it big time when you’ve done it to excess. And having had to live with the excess side of things since 2014, when my body just went completely haywire, I’ve become quite knowledgeable about its impact.
Continue reading Living with Dysautonomia and EDS – Chapter 9 “Adrenergics Anonymous”