Tag Archives: Fatigue

Stories about fatigue symptoms for those with dysautonomia, Ehlers Danlos Syndrome, a chronic health condition or anyone else taking life too fast

How I found my new normal

F**k  It.  I’m out.

Once upon a time (in 2016 to be exact), I had been sitting, pondering about officially launching this blog of mine.  I had been holding off going public worrying about how it would affect the work I’d been doing.  Thinking by some miracle my condition would pass (ha).

I didn’t want to look like a fraud (you know, I might roll over one day and be restored back to the manufacturer’s settings??).  But realistically, I had been fooling myself thinking, at that point, that I could resume  a “normal” working life.  Whatever that was anymore.  Dream on. My work had been suffering anyway.  In fact, I had to completely rethink it.

A new normal was required. Continue reading How I found my new normal

Nikki Albert: Living well with chronic illness

This week, I would like to introduce you to Nikki Albert who runs the brainlessblogger blog.  Nikki manages chronic migraines, fibromyalgia and major depressive disorder.  Here’s her frank and insightful account of her story.

Continue reading Nikki Albert: Living well with chronic illness

Kayla Kurin: Living well with chronic illness

I’ve been meaning to write about Kayla for some time. We connected a few months back but it’s taken me some time to sit down and do her justice! Kayla has lived with Chronic Fatigue Syndrome (CFS)/ME since she was 12 years old. Continue reading Kayla Kurin: Living well with chronic illness

What is the Impact of Living on Too Much Adrenaline?

Are you running around on adrenaline, much like ‘roadrunner’ just running non stop?  Living on too much adrenaline?

Following my own rather large run in with adrenaline and the diagnosis of having dysautonomia and being hyperadrenergic (a-dren-err-gic – I still have problems saying it) I’ve become somewhat interested in the role it plays on the body and thought I would share some of what I know.  So here goes…. Continue reading What is the Impact of Living on Too Much Adrenaline?

Donna Grant: Living well with chronic illness

This week, I would like to introduce you to Donna Grant who lives with Fibromyalgia and Chronic Lyme Disease and writes about her experiences on her February Stars blog.  Here she talks about her experiences and living well with her chronic illness.

Continue reading Donna Grant: Living well with chronic illness

Charlotte Wells: Living well with chronic illness

This week, I would like you to meet Charlotte Wells from charlottedebs.com.  Charlotte has been diagnosed with fibromyalgia, chronic pain. ME/CFS and Myoclonic Seizures. She talks here about how she does her best to live as well as she can with her chronic illnesses.

Continue reading Charlotte Wells: Living well with chronic illness

Living with Dysautonomia and EDS – Chapter 13 “My Top 10 Countdown”

“My top 10 countdown for living with dysautonomia and EDS”

It’s been a few years since things went awry with this body of mine.  I’ve now got myself to a much better place but it’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and EDS!

So here are the “hits” for your enjoyment…

Continue reading Living with Dysautonomia and EDS – Chapter 13 “My Top 10 Countdown”