Tag Archives: Exercise

Stories about the impact of exercise for those with dysautonomia

Exercising with Dysautonomia – Part 3 – “Cardio is too Hardio”

My trials and tribulations of exercising with dysautonomia!

If you’re living with dysautonomia, you’ve probably been told to exercise to improve your predicament. However, it doesn’t always work out that way.  Here’s my story of why I found exercising with dysautonomia hard.

Previous Spesh set me on a routine of daily cardio to grow my blood volume and recondition me and my muscles back to health.  At least, that was the plan.

Here’s a bit of before and after of what has resulted: Continue reading Exercising with Dysautonomia – Part 3 – “Cardio is too Hardio”

Finding Balance in the Madness – Chapter 6 “Are you Running your Life?”

Struggling to cope with finding balance in your life?  Here are some of my musings entitled “Are you running your life?”

How much of your day runs like a to-do list rather than one of pure enjoyment and fulfilment?

One day, 18 months ago, as I sat by a riverbank, I contemplated my health issues, my life and what my next steps were going to be.

Continue reading Finding Balance in the Madness – Chapter 6 “Are you Running your Life?”

Living with Dysautonomia and EDS – Chapter 6 “The Goldilocks Plan”

“The Goldilocks Plan” to living with dysautonomia and EDS.

Living with dysautonomia and EDS has been a massive rollercoaster.

The downs have been many but I wouldn’t have made it through the last two years without the ups.

The ups are simply those gorgeous people around me who have helped keep me sane and to feel cared for.  Numero uno, my husband (who does just about everything there is to do around here), then there are my children (for forever giving me something to laugh about and for just loving their mum), my family (for being there during the tough times and helping me in whatever way I needed it) and, finally, my friends (the rock stars who have stuck by me and not put me in the ‘too hard’ basket).

This last year has also been about developing what I’ve now called my Goldilocks recovery plan.  So named because quite simply it’s been about finding out what’s ‘just right’ for me.  There has been much trial and error!

This last year has been about developing what I've now called my Goldilocks recovery plan. Click To Tweet

Here’s the list of my do’s and don’ts which hopefully should help others suffering from dysautonomia and EDS. Continue reading Living with Dysautonomia and EDS – Chapter 6 “The Goldilocks Plan”

Exercising with Dysautonomia – Part 2 “Bite Sized Cardio”

My trials and tribulations of exercising with dysautonomia and EDS – “Bite Sized Cardio”

After ditching cardio for 3 weeks to try to allow this body to calm down (with mixed and not very successful results I have to say), I resolved to do SOMETHING. After all the pain my bloody leg muscles went through in Sept and Oct when I restarted exercise I can’t put myself in a position where I have to go through that again. Continue reading Exercising with Dysautonomia – Part 2 “Bite Sized Cardio”

Exercising with Dysautonomia – Part 1 “The Perpectual Cyclist”

My trials and tribulations of exercising with dysautonomia and EDS – “The Perpetual Cyclist”

What is it with tourists?

As I was cycling along today (which I am meant to do everyday – hmm subject of another post) the inevitable happened.  A nice looking couple (obviously from my home country England, judging by the accents) decided to ask me for directions to the beach.

Me – who obviously just looks like I’m out for a morning meander on my cruiser bike rather than the huffing, puffing lard arse that I was feeling.   Continue reading Exercising with Dysautonomia – Part 1 “The Perpectual Cyclist”

Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”

What living with dysautonomia and EDS feels like – “The Poo Truck”

My wham bam health issues appeared in November 2014. However, looking back, before my ‘tsunami’ of symptoms hit, a slow trickle of odd symptoms had appeared.  I’d been under quite a bit of stress from a job for a period of 6 months and I had a few odd, isolated bodily symptoms occur (which I can now recognise as the early warning signs).  I had weird aches in my hands, I was thirstier than normal, I was wired and tired, I got the shakes when under pressure and I started getting weird nightmares on top of insomnia (Dennis the Menace flying spider kind of nightmares).  I then experienced the ‘oh god I feel shit I must be unfit’ after pilates (come on?) and I had my first proper almighty so-called panic attack (an ambulance job).  But many of these were simply explained away as stress related reactions.

Then I sealed my fate by visiting some hot springs for the day in late November 2014.  Continue reading Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”

Living with Dysautonomia and EDS – Chapter 1 “Supercharged”

What living with dysautonomia and EDS feels like – “Supercharged out of my Head”

Yup you guessed it, another shitful attack. God, this body is a pain in the neck.

My meds were changed 3 weeks ago because of adrenaline issues, I had reduced my meetings and the intensity of my exercise program and was doing really well.

Then I changed something.  Moved my usual morning exercise to the evening last night, evidently when the impact of my glory wonder drugs were at their lowest, and had a sleep from hell.    Continue reading Living with Dysautonomia and EDS – Chapter 1 “Supercharged”