Tag Archives: Exercise

Stories about the impact of exercise for those with dysautonomia

Exercising with Dysautonomia – Part 1 “The Perpectual Cyclist”

My trials and tribulations of exercising with dysautonomia and EDS – “The Perpetual Cyclist”

What is it with tourists?

As I was cycling along today (which I am meant to do everyday – hmm subject of another post) the inevitable happened.  A nice looking couple (obviously from my home country England, judging by the accents) decided to ask me for directions to the beach.

Me – who obviously just looks like I’m out for a morning meander on my cruiser bike rather than the huffing, puffing lard arse that I was feeling.   Continue reading Exercising with Dysautonomia – Part 1 “The Perpectual Cyclist”

Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”

What living with dysautonomia and EDS feels like – “The Poo Truck”

My wham bam health issues appeared in November 2014. However, looking back, before my ‘tsunami’ of symptoms hit, a slow trickle of odd symptoms had appeared.  I’d been under quite a bit of stress from a job for a period of 6 months and I had a few odd, isolated bodily symptoms occur (which I can now recognise as the early warning signs).  I had weird aches in my hands, I was thirstier than normal, I was wired and tired, I got the shakes when under pressure and I started getting weird nightmares on top of insomnia (Dennis the Menace flying spider kind of nightmares).  I then experienced the ‘oh god I feel shit I must be unfit’ after pilates (come on?) and I had my first proper almighty so-called panic attack (an ambulance job).  But many of these were simply explained away as stress related reactions.

Then I sealed my fate by visiting some hot springs for the day in late November 2014.  Continue reading Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”

Living with Dysautonomia and EDS – Chapter 1 “Supercharged”

What living with dysautonomia and EDS feels like – “Supercharged out of my Head”

Yup you guessed it, another shitful attack. God, this body is a pain in the neck.

My meds were changed 3 weeks ago because of adrenaline issues, I had reduced my meetings and the intensity of my exercise program and was doing really well.

Then I changed something.  Moved my usual morning exercise to the evening last night, evidently when the impact of my glory wonder drugs were at their lowest, and had a sleep from hell.    Continue reading Living with Dysautonomia and EDS – Chapter 1 “Supercharged”

Kayla Kurin: Living well with chronic illness

I’ve been meaning to write about Kayla for some time. We connected a few months back but it’s taken me some time to sit down and do her justice! Kayla has lived with Chronic Fatigue Syndrome (CFS)/ME since she was 12 years old. Continue reading Kayla Kurin: Living well with chronic illness

Julie Ryan: Living well with chronic illness

This week I am extremely excited to introduce Julie Ryan to you, who is living well with chronic illness. For those that don’t know, the Chronic Illness Bloggers Network is the brainchild of Julie, intended to connect bloggers and businesses in the chronic illness community for mutual benefit. Julie also has her own blog called Counting My Spoons.

Continue reading Julie Ryan: Living well with chronic illness

Rachel Gorman: Living well with chronic illness

Living well with chronic illness… How acupuncture, Chinese medicine and Yoga can change your life…

Rachel Gorman was diagnosed with idiopathic POTS, fibromyalgia, gastroparesis, Hashimoto’s thyroiditis and a multitude of other ‘opathies over a 4 year period from 2012 to 2016.

Continue reading Rachel Gorman: Living well with chronic illness

Linda: Living well with chronic illness

My last post in this new series about living well with chronic illness was about Brittany and her love of coffee. This week I would like to introduce Linda, another chronic illness blogger, who lives in a most beautiful part of the world and gets to work with my favourite sweet treat – chocolate!

Life with ME/CFS and Fibromyalgia

Continue reading Linda: Living well with chronic illness