Tag Archives: Exercise

Stories about the impact of exercise for those with dysautonomia

Living with Dysautonomia and EDS – Chapter 14 “My Last Flutter with Too Much Fun”

Another instalment from a day in my life of living with dysautonomia and EDS!

This week is an anniversary of sorts.  An anniversary that coincides with a famous horse race, The Melbourne Cup.

It marks the time I last skipped in front of the TV!

Here’s a recap from that memorable day in November 2015….

Continue reading Living with Dysautonomia and EDS – Chapter 14 “My Last Flutter with Too Much Fun”

Living with Dysautonomia and EDS – Chapter 13 “My Top 10 Countdown”

“My top 10 countdown for living with dysautonomia and EDS”

It’s been a few years since things went awry with this body of mine.  I’ve now got myself to a much better place but it’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and EDS!

So here are the “hits” for your enjoyment…

Continue reading Living with Dysautonomia and EDS – Chapter 13 “My Top 10 Countdown”

Living with Dysautonomia and EDS – Chapter 12 “How to Manage Panic Attacks”

One of the symptoms of living with dysautonomia is so-called panic attacks.  Here’s “How to Manage Panic Attacks without Panicking!”

40% of people deal with panic attacks at some point in their life and often in silence.

I think it’s time we lifted the lid and talked about how to manage panic attacks, what they feel like and what can cause them. Continue reading Living with Dysautonomia and EDS – Chapter 12 “How to Manage Panic Attacks”

Exercising with Dysautonomia – Part 3 – “Cardio is too Hardio”

My trials and tribulations of exercising with dysautonomia!

If you’re living with dysautonomia, you’ve probably been told to exercise to improve your predicament. However, it doesn’t always work out that way.  Here’s my story of why I found exercising with dysautonomia hard.

Previous Spesh set me on a routine of daily cardio to grow my blood volume and recondition me and my muscles back to health.  At least, that was the plan.

Here’s a bit of before and after of what has resulted: Continue reading Exercising with Dysautonomia – Part 3 – “Cardio is too Hardio”

Finding Balance in the Madness – Chapter 6 “Are you Running your Life?”

Struggling to cope with finding balance in your life?  Here are some of my musings entitled “Are you running your life?”

How much of your day runs like a to-do list rather than one of pure enjoyment and fulfilment?

One day, 18 months ago, as I sat by a riverbank, I contemplated my health issues, my life and what my next steps were going to be.

Continue reading Finding Balance in the Madness – Chapter 6 “Are you Running your Life?”

Living with Dysautonomia and EDS – Chapter 6 “The Goldilocks Plan”

“The Goldilocks Plan” to living with dysautonomia and EDS.

Living with dysautonomia and EDS has been a massive rollercoaster.

The downs have been many but I wouldn’t have made it through the last two years without the ups.

The ups are simply those gorgeous people around me who have helped keep me sane and to feel cared for.  Numero uno, my husband (who does just about everything there is to do around here), then there are my children (for forever giving me something to laugh about and for just loving their mum), my family (for being there during the tough times and helping me in whatever way I needed it) and, finally, my friends (the rock stars who have stuck by me and not put me in the ‘too hard’ basket).

This last year has also been about developing what I’ve now called my Goldilocks recovery plan.  So named because quite simply it’s been about finding out what’s ‘just right’ for me.  There has been much trial and error!

This last year has been about developing what I've now called my Goldilocks recovery plan. Click To Tweet

Here’s the list of my do’s and don’ts which hopefully should help others suffering from dysautonomia and EDS. Continue reading Living with Dysautonomia and EDS – Chapter 6 “The Goldilocks Plan”

Exercising with Dysautonomia – Part 2 “Bite Sized Cardio”

My trials and tribulations of exercising with dysautonomia and EDS – “Bite Sized Cardio”

After ditching cardio for 3 weeks to try to allow this body to calm down (with mixed and not very successful results I have to say), I resolved to do SOMETHING. After all the pain my bloody leg muscles went through in Sept and Oct when I restarted exercise I can’t put myself in a position where I have to go through that again. Continue reading Exercising with Dysautonomia – Part 2 “Bite Sized Cardio”