Tag Archives: Ehlers Danlos Syndrome

Stories about Ehlers Danlos Syndrome (Hypermobility Type)

Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”

What living with dysautonomia and EDS feels like – “The Poo Truck”

My wham bam health issues appeared in November 2014. However, looking back, before my ‘tsunami’ of symptoms hit, a slow trickle of odd symptoms had appeared.  I’d been under quite a bit of stress from a job for a period of 6 months and I had a few odd, isolated bodily symptoms occur (which I can now recognise as the early warning signs).  I had weird aches in my hands, I was thirstier than normal, I was wired and tired, I got the shakes when under pressure and I started getting weird nightmares on top of insomnia (Dennis the Menace flying spider kind of nightmares).  I then experienced the ‘oh god I feel shit I must be unfit’ after pilates (come on?) and I had my first proper almighty so-called panic attack (an ambulance job).  But many of these were simply explained away as stress related reactions.

Then I sealed my fate by visiting some hot springs for the day in late November 2014.  Continue reading Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”

About Ehlers Danlos Syndrome – “Pushing through Fatigue”

What living with Ehlers Danlos Syndrome feels like – “Pushing through Fatigue”

I just watched a really informative video by Dr Alan Pocinki who specializes in treating patients with Ehlers Danlos Syndrome (link here). Whilst it is specific to EDS and people who have hypermobility the themes in here are very relevant to anyone who suffers from fatigue so read on… Continue reading About Ehlers Danlos Syndrome – “Pushing through Fatigue”

Cheyanne: Living well with chronic illness

This week I would like to welcome Cheyanne from Hospitalprincess.com to the Living Well with Chronic Illness series.

Cheyanne has Ehlers Danlos Syndrome Type 3, Mast Cell Disease, Dysautonomia/Postural Orthostatic Tachycardia Syndrome (POTS), Gastroparesis, and Fibromyalgia. The Ehlers Danlos Syndrome is primary, while the others are secondary. The diagnosis that interferes with her life the most is Mast Cell Disease.

Continue reading Cheyanne: Living well with chronic illness

Brittany Wattenbarger: Living well with chronic illness

One of the things I aim to do with this website is offer inspiration to others faced with illness in living their lives as best they can.

This is the first article in a series of feature posts called “Living Well with Chronic Illness” and I am extremely pleased to introduce Brittany Wattenbarger, of A Southern Celiac, as my first guest.  Drum roll please… Continue reading Brittany Wattenbarger: Living well with chronic illness