Tag Archives: Dysautonomia

Stories about living with dysautonomia and the symptoms of dysautonomia

Exercising with Dysautonomia – Part 3 – “Cardio is too Hardio”

My trials and tribulations of exercising with dysautonomia!

If you’re living with dysautonomia, you’ve probably been told to exercise to improve your predicament. However, it doesn’t always work out that way.  Here’s my story of why I found exercising with dysautonomia hard.

Previous Spesh set me on a routine of daily cardio to grow my blood volume and recondition me and my muscles back to health.  At least, that was the plan.

Here’s a bit of before and after of what has resulted: Continue reading Exercising with Dysautonomia – Part 3 – “Cardio is too Hardio”

Do I have Ehlers Danlos Syndrome (EDS)?

Dizzy? Clumsy? Bruise easily?  Joint pain? Feel faint? Get tired a lot?  Feel anxious?

You might have Ehlers Danlos Syndrome (Hypermobile Type) or hypermobility – a genetic connective tissue disorder.

Continue reading Do I have Ehlers Danlos Syndrome (EDS)?

Brittany Wattenbarger: Living well with chronic illness

One of the things I aim to do with this website is offer inspiration to others faced with illness in living their lives as best they can.

This is the first article in a series of feature posts called “Living Well with Chronic Illness” and I am extremely pleased to introduce Brittany Wattenbarger, of A Southern Celiac, as my first guest.  Drum roll please… Continue reading Brittany Wattenbarger: Living well with chronic illness

Living with Dysautonomia and EDS – Chapter 10

My latest musings on living with dysautonomia and EDS that I shall call “The Rise and Fall of the Red Card!”

A tale of attempting silence by non verbal cues in my house… (Anyone that knows my house will know where this is going…)

Talking and laughing, the things that we all take for granted, are the things that I can no longer do a great deal of. Which is a complete shit because, hey, who doesn’t like doing those things? It’s called fun, right?

Continue reading Living with Dysautonomia and EDS – Chapter 10

Living with Dysautonomia and EDS – Chapter 8 “What it Means to be a Spoonie”

What it’s like living with dysautonomia and EDS – what it means to be a spoonie and manage your day according to spoons.  Note: nothing to do with spontaneous acts of spooning – sorry to disappoint! 🙂

Spoonies I’m in some strife and I need your help with my pacing strategies.

This is your call to action….. (Everyone else, strange ‘spoonie’ and ‘spoon’ references will become clearer….)

Life these last few weeks has been ridiculous.  This crazy, stupid, mad woman has been cramming just too much in.  My pacing strategies have gone completely out the window.  And for what? To try and earn some god damn money.  Damn it. Continue reading Living with Dysautonomia and EDS – Chapter 8 “What it Means to be a Spoonie”

Just for a bit of sleep

Not my usual buoyant self.  Woken from sleep.  Mind you it was 1am in the morning and my patience was wearing thin.  Freddie Kruger was in the house.

justforabitofsleep

Could it be POTS or Dysautonomia?

Exhausted all the time? Dizzy? Anxious? Could it be POTS or dysautonomia?

It can affect you at any age and there are many reasons it can present itself. Perhaps your doctors haven’t been able to put their finger on what’s wrong or you still feel something is amiss? Could it be POTS?

The following article about a young man and his journey to get diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) will provide some interesting insight into what this form of dysautonomia is and how, to the untrained eye, it can be missed.  Continue reading Could it be POTS or Dysautonomia?