Tag Archives: Dysautonomia

Stories about living with dysautonomia and the symptoms of dysautonomia

How I found my new normal

F**k  It.  I’m out.

Once upon a time (in 2016 to be exact), I had been sitting, pondering about officially launching this blog of mine.  I had been holding off going public worrying about how it would affect the work I’d been doing.  Thinking by some miracle my condition would pass (ha).

I didn’t want to look like a fraud (you know, I might roll over one day and be restored back to the manufacturer’s settings??).  But realistically, I had been fooling myself thinking, at that point, that I could resume  a “normal” working life.  Whatever that was anymore.  Dream on. My work had been suffering anyway.  In fact, I had to completely rethink it.

A new normal was required. Continue reading How I found my new normal

Living with Dysautonomia and EDS – Chapter 14 “My Last Flutter with Too Much Fun”

Another instalment from a day in my life of living with dysautonomia and EDS!

This week is an anniversary of sorts.  An anniversary that coincides with a famous horse race, The Melbourne Cup.

It marks the time I last skipped in front of the TV!

Here’s an recap from that memorable day in November 2015….

Continue reading Living with Dysautonomia and EDS – Chapter 14 “My Last Flutter with Too Much Fun”

What is the Impact of Living on Too Much Adrenaline?

Are you running around on adrenaline, much like ‘roadrunner’ just running non stop?  Living on too much adrenaline?

Following my own rather large run in with adrenaline and the diagnosis of having dysautonomia and being hyperadrenergic (a-dren-err-gic – I still have problems saying it) I’ve become somewhat interested in the role it plays on the body and thought I would share some of what I know.  So here goes…. Continue reading What is the Impact of Living on Too Much Adrenaline?

Cheyanne: Living well with chronic illness

This week I would like to welcome Cheyanne from Hospitalprincess.com to the Living Well with Chronic Illness series.

Cheyanne has Ehlers Danlos Syndrome Type 3, Mast Cell Disease, Dysautonomia/Postural Orthostatic Tachycardia Syndrome (POTS), Gastroparesis, and Fibromyalgia. The Ehlers Danlos Syndrome is primary, while the others are secondary. The diagnosis that interferes with her life the most is Mast Cell Disease.

Continue reading Cheyanne: Living well with chronic illness

Living with Dysautonomia and EDS – Chapter 13 “My Top 10 Countdown”

“My top 10 countdown for living with dysautonomia and EDS”

It’s been a few years since things went awry with this body of mine.  I’ve now got myself to a much better place but it’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and EDS!

So here are the “hits” for your enjoyment…

Continue reading Living with Dysautonomia and EDS – Chapter 13 “My Top 10 Countdown”

Living with Dysautonomia and EDS – Chapter 12 “How to Manage Panic Attacks”

One of the symptoms of living with dysautonomia is so-called panic attacks.  Here’s “How to Manage Panic Attacks without Panicking!”

40% of people deal with panic attacks at some point in their life and often in silence.

I think it’s time we lifted the lid and talked about how to manage panic attacks, what they feel like and what can cause them. Continue reading Living with Dysautonomia and EDS – Chapter 12 “How to Manage Panic Attacks”

Rachel Gorman: Living well with chronic illness

Living well with chronic illness… How acupuncture, Chinese medicine and Yoga can change your life…

Rachel Gorman was diagnosed with idiopathic POTS, fibromyalgia, gastroparesis, Hashimoto’s thyroiditis and a multitude of other ‘opathies over a 4 year period from 2012 to 2016.

Continue reading Rachel Gorman: Living well with chronic illness