Tag Archives: Adrenaline

Stories about the impact of adrenaline on our bodies for those with a chronic health condition or anyone else taking life too fast

Living with Dysautonomia and EDS – Chapter 7 “Dealing with the Invisible”

What it feels like living with dysautonomia and EDS – “Dealing with the Invisible”

Frustrated.  Angry.  Disappointed.  Bloody over it.

Woke up this morning not in the best mood (can you tell?).  Too many expletives to mention exited my mouth.  Husband has slunk off to a quieter place.  Though he did make me a cup of tea first.  All because of my invisible illness.  Continue reading Living with Dysautonomia and EDS – Chapter 7 “Dealing with the Invisible”

Living with Dysautonomia and EDS – Chapter 6 “The Goldilocks Plan”

“The Goldilocks Plan” to living with dysautonomia and EDS.

Living with dysautonomia and EDS has been a massive rollercoaster.

The downs have been many but I wouldn’t have made it through the last two years without the ups.

The ups are simply those gorgeous people around me who have helped keep me sane and to feel cared for.  Numero uno, my husband (who does just about everything there is to do around here), then there are my children (for forever giving me something to laugh about and for just loving their mum), my family (for being there during the tough times and helping me in whatever way I needed it) and, finally, my friends (the rock stars who have stuck by me and not put me in the ‘too hard’ basket).

This last year has also been about developing what I’ve now called my Goldilocks recovery plan.  So named because quite simply it’s been about finding out what’s ‘just right’ for me.  There has been much trial and error!

This last year has been about developing what I've now called my Goldilocks recovery plan. Click To Tweet

Here’s the list of my do’s and don’ts which hopefully should help others suffering from dysautonomia and EDS. Continue reading Living with Dysautonomia and EDS – Chapter 6 “The Goldilocks Plan”

Living with Dysautonomia and EDS – Chapter 5 “Me Wiring is Off”

What living with dysautonomia and EDS feels like – “Me Wiring is Off”

When things went wrong 18 months ago, it felt like a malfunction, like the machine went wrong or like the accelerator got left in the on position.  Well yesterday I got validation this is indeed correct.  It’s called neurally mediated hypotension. Da dah! Continue reading Living with Dysautonomia and EDS – Chapter 5 “Me Wiring is Off”

Living with Dysautonomia and EDS – Chapter 4 “Grog the Head”

What living with dysautonomia and EDS feels like – introducing…”Grog the Head”

A friend of mine who made a daily appearance for 6 months, stopped for 2 months and has now come back again is Grog, as I have now named him (aka bear with a sore head).  When he’s in full swing he’s like the hangover (with full on banging migraines) that won’t go away and, over the last 12 months, has become a pretty consistent member of my crew.  It seems it’s all part of the delightful bag of tricks this weird condition brings. Continue reading Living with Dysautonomia and EDS – Chapter 4 “Grog the Head”

Finding Balance in the Madness – Chapter 1 “Meditating like a Mad Woman”

How to find more balance in your life – by “Meditating like a Mad Woman” of course!

If you had asked me two years ago what I thought about meditation, you would have got a scoff, a sniff and even perhaps an eyeball roll.

I had had some experience of trying it before but I often came out wondering what visualising, body scanning and breathing actually did for me (other than the obvious!!).

What I hadn’t appreciated was the calm I often felt during and after doing it.  Me thinks now my head was probably just buzzing a bit much for me to see the wood for the trees!! Continue reading Finding Balance in the Madness – Chapter 1 “Meditating like a Mad Woman”

Exercising with Dysautonomia – Part 2 “Bite Sized Cardio”

My trials and tribulations of exercising with dysautonomia and EDS – “Bite Sized Cardio”

After ditching cardio for 3 weeks to try to allow this body to calm down (with mixed and not very successful results I have to say), I resolved to do SOMETHING. After all the pain my bloody leg muscles went through in Sept and Oct when I restarted exercise I can’t put myself in a position where I have to go through that again. Continue reading Exercising with Dysautonomia – Part 2 “Bite Sized Cardio”

Exercising with Dysautonomia – Part 1 “The Perpectual Cyclist”

My trials and tribulations of exercising with dysautonomia and EDS – “The Perpetual Cyclist”

What is it with tourists?

As I was cycling along today (which I am meant to do everyday – hmm subject of another post) the inevitable happened.  A nice looking couple (obviously from my home country England, judging by the accents) decided to ask me for directions to the beach.

Me – who obviously just looks like I’m out for a morning meander on my cruiser bike rather than the huffing, puffing lard arse that I was feeling.   Continue reading Exercising with Dysautonomia – Part 1 “The Perpectual Cyclist”