Living with dysautonomia and EDS – “My Daily Specials of Dreams, Hangovers and Fatigue”
This is me. The dreamer. The hungover. The fatigued. Daily specials on my menu of life. Here’s a taste…
Every morning, to varying degrees depending on how busy my day was previously, I wake in a fog. A pea soup kind of fog. Feeling like I’ve been somewhere half the night.
In another mad dream. With people I don’t know, writing the story as I go. Continue reading Living with Dysautonomia and EDS – Chapter 11 “My Daily Specials”
How to get a new life when you have a chronic illness. Say what? Can those two things coexist? For me, they do. Here’s “How I Got Sick and Got a Life”….
It’s been two years since my wheels came off quite spectacularly. It’s been two years of major body and life discovery. Not only about this health doo dah and what it now means for my life but also how, unbeknowns to me, this health condition had been working its magic in the background prepping me for my big fall.
It had been there all along waiting for its special moment to shine.
Continue reading How to Get a New Life – Chapter 7 “How I Got a Life”
My latest musings on living with dysautonomia and EDS that I shall call “The Rise and Fall of the Red Card!”
A tale of attempting silence by non verbal cues in my house… (Anyone that knows my house will know where this is going…)
Talking and laughing, the things that we all take for granted, are the things that I can no longer do a great deal of. Which is a complete shit because, hey, who doesn’t like doing those things? It’s called fun, right?
Continue reading Living with Dysautonomia and EDS – Chapter 10
What it feels like living with dysautonomia and EDS – like I’ve joined “Adrenergics Anonymous”!
Adrenaline, my adrenergic tendencies and I have become very acquainted. It’s my side kick in life.
It’s a bit like your favourite tipple at the pub when someone asks ‘what’s your poison?’. You lap it up at the time but suffer from the effects of it big time when you’ve done it to excess. And having had to live with the excess side of things since 2014, when my body just went completely haywire, I’ve become quite knowledgeable about its impact.
Continue reading Living with Dysautonomia and EDS – Chapter 9 “Adrenergics Anonymous”
What it’s like living with dysautonomia and EDS – what it means to be a spoonie and manage your day according to spoons. Note: nothing to do with spontaneous acts of spooning – sorry to disappoint! 🙂
Spoonies I’m in some strife and I need your help with my pacing strategies.
This is your call to action….. (Everyone else, strange ‘spoonie’ and ‘spoon’ references will become clearer….)
Life these last few weeks has been ridiculous. This crazy, stupid, mad woman has been cramming just too much in. My pacing strategies have gone completely out the window. And for what? To try and earn some god damn money. Damn it. Continue reading Living with Dysautonomia and EDS – Chapter 8 “What it Means to be a Spoonie”
Not my usual buoyant self. Woken from sleep. Mind you it was 1am in the morning and my patience was wearing thin. Freddie Kruger was in the house.
My story of how I got diagnosed with Ehlers Danlos Syndrome (EDS) and Dysautonomia – “Google Saved my Soul – but I’m Still a Little Bit Mad”
OK I’ve been saving this one up. Stewing on it and cooking up my mad woman.
Hence attached photo of angry woman – she is how I feel on the topic to come. I make no apology for the length of this post, it’s reflective of the time it’s taken me to get the correct diagnosis of EDS…