Quote of the day

Courage does not always roar, sometimes it’s the quiet voice at the end of the day that says “I will try again tomorrow”

Mary Anne Radmacher

About Ehlers Danlos Syndrome – “Pushing through Fatigue”

What living with Ehlers Danlos Syndrome feels like – “Pushing through Fatigue”

I just watched a really informative video by Dr Alan Pocinki who specializes in treating patients with Ehlers Danlos Syndrome (link here). Whilst it is specific to EDS and people who have hypermobility the themes in here are very relevant to anyone who suffers from fatigue so read on… Continue reading About Ehlers Danlos Syndrome – “Pushing through Fatigue”

Living with Dysautonomia and EDS – Chapter 1 “Supercharged”

What living with dysautonomia and EDS feels like – “Supercharged out of my Head”

Yup you guessed it, another shitful attack. God, this body is a pain in the neck.

My meds were changed 3 weeks ago because of adrenaline issues, I had reduced my meetings and the intensity of my exercise program and was doing really well.

Then I changed something.  Moved my usual morning exercise to the evening last night, evidently when the impact of my glory wonder drugs were at their lowest, and had a sleep from hell.    Continue reading Living with Dysautonomia and EDS – Chapter 1 “Supercharged”

Hypermobile Chick Living with Dysautonomia. Finding Balance in the Madness.

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