Finding Balance in the Madness – Chapter 1 “Meditating like a Mad Woman”

How to find more balance in your life – by “Meditating like a Mad Woman” of course!

If you had asked me two years ago what I thought about meditation, you would have got a scoff, a sniff and even perhaps an eyeball roll.

I had had some experience of trying it before but I often came out wondering what visualising, body scanning and breathing actually did for me (other than the obvious!!).

What I hadn’t appreciated was the calm I often felt during and after doing it.  Me thinks now my head was probably just buzzing a bit much for me to see the wood for the trees!! Continue reading Finding Balance in the Madness – Chapter 1 “Meditating like a Mad Woman”

Exercising with Dysautonomia – Part 2 “Bite Sized Cardio”

My trials and tribulations of exercising with dysautonomia and EDS – “Bite Sized Cardio”

After ditching cardio for 3 weeks to try to allow this body to calm down (with mixed and not very successful results I have to say), I resolved to do SOMETHING. After all the pain my bloody leg muscles went through in Sept and Oct when I restarted exercise I can’t put myself in a position where I have to go through that again. Continue reading Exercising with Dysautonomia – Part 2 “Bite Sized Cardio”

Exercising with Dysautonomia – Part 1 “The Perpectual Cyclist”

My trials and tribulations of exercising with dysautonomia and EDS – “The Perpetual Cyclist”

What is it with tourists?

As I was cycling along today (which I am meant to do everyday – hmm subject of another post) the inevitable happened.  A nice looking couple (obviously from my home country England, judging by the accents) decided to ask me for directions to the beach.

Me – who obviously just looks like I’m out for a morning meander on my cruiser bike rather than the huffing, puffing lard arse that I was feeling.   Continue reading Exercising with Dysautonomia – Part 1 “The Perpectual Cyclist”

Living with Dysautonomia and EDS – Chapter 3 “Up and Down Like a Yoyo”

What living with dysautonomia and EDS feels like – “Up and Down like a Yoyo”

After 4 months on Florinef we decided to part company.  The last month has been too hard – too many headaches, too much fatigue and a blood pressure that was a little high for Spesh’s liking.  So I’m now week two, another two to go before we possibly try Midodrine, and it’s turning out to be a bloody nightmare.  Mad swings from high to low blood pressure giving me all sorts of grief.  Within one day last week I was fluctuating between 85/65 and 150/110. Continue reading Living with Dysautonomia and EDS – Chapter 3 “Up and Down Like a Yoyo”

Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”

What living with dysautonomia and EDS feels like – “The Poo Truck”

My wham bam health issues appeared in November 2014. However, looking back, before my ‘tsunami’ of symptoms hit, a slow trickle of odd symptoms had appeared.  I’d been under quite a bit of stress from a job for a period of 6 months and I had a few odd, isolated bodily symptoms occur (which I can now recognise as the early warning signs).  I had weird aches in my hands, I was thirstier than normal, I was wired and tired, I got the shakes when under pressure and I started getting weird nightmares on top of insomnia (Dennis the Menace flying spider kind of nightmares).  I then experienced the ‘oh god I feel shit I must be unfit’ after pilates (come on?) and I had my first proper almighty so-called panic attack (an ambulance job).  But many of these were simply explained away as stress related reactions.

Then I sealed my fate by visiting some hot springs for the day in late November 2014.  Continue reading Living with Dysautomonia and EDS – Chapter 2 “The Poo Truck”

Hypermobile Chick Living with Dysautonomia. Finding Balance in the Madness.

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