How to manage change when the future is unknown

I have written the following post in collaboration with Sam Moss of My Medical Musings and I have referenced some of the posts that Sam has written there.  It makes for powerful reading in terms of what you can do to better manage your personal circumstances when you find yourself in a place of despair.  Her learnings will also help anyone undergoing change when that change is occurring through choice.

Here’s some of her story.

Continue reading How to manage change when the future is unknown

Kamilah Howard: Living well with chronic illness

This week I would like to introduce you to Kamilah Howard from Anchoredinhealth.com.

Kamilah has asthma and gluten intolerance. Her asthma symptoms are mostly exercise-induced, which is something she does almost every day. Her gluten intolerance really affects what she eats day to day, but it’s very manageable through a gluten free diet.

Continue reading Kamilah Howard: Living well with chronic illness

Kayla Kurin: Living well with chronic illness

I’ve been meaning to write about Kayla for some time. We connected a few months back but it’s taken me some time to sit down and do her justice! Kayla has lived with Chronic Fatigue Syndrome (CFS)/ME since she was 12 years old. Continue reading Kayla Kurin: Living well with chronic illness

Are you living on adrenaline?

Are you running around on adrenaline, much like ‘roadrunner’ just running non stop?

Following my own rather large run in with adrenaline and the diagnosis of having dysautonomia and being hyperadrenergic (a-dren-err-gic – I still have problems saying it) I’ve become somewhat interested in the role it plays on the body and thought I would share some of what I know.  So here goes…. Continue reading Are you living on adrenaline?

Cheyanne: Living well with chronic illness

This week I would like to welcome Cheyanne from Hospitalprincess.com to the Living Well with Chronic Illness series.

Cheyanne has Ehlers Danlos Syndrome Type 3, Mast Cell Disease, Dysautonomia/Postural Orthostatic Tachycardia Syndrome (POTS), Gastroparesis, and Fibromyalgia. The Ehlers Danlos Syndrome is primary, while the others are secondary. The diagnosis that interferes with her life the most is Mast Cell Disease.

Continue reading Cheyanne: Living well with chronic illness

My top 10 countdown for living with dysautonomia and EDS

Three years after things went awry with this body of mine, I’ve now got myself to a much better place.  It’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was about time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and Ehlers Danlos Syndrome (Hypermobility Type)!

So here are the “hits” for your enjoyment…

Continue reading My top 10 countdown for living with dysautonomia and EDS

Shawn Bethea: Living well with chronic illness

Please welcome Shawn Bethea to the Living Well series!

Shawn suffers from Ulcerative Colitis and has lived with it for pretty much all her young life (she first started getting sick when she was around 11 years old).

Continue reading Shawn Bethea: Living well with chronic illness

Hypermobile Chick Living with Dysautonomia. Finding Balance in the Madness.

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