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How to Work with Chronic Illness

“How I Found a Way to Work Despite Chronic Illness”

To look at me is to look at anyone else.

I look like a typical 40 something with the confidence you would expect of someone who has been in her profession for 25 years. If you are talking with me, you would likely also make the assumption that I hold down a full time job. Like everyone else who looks and sounds a bit like me.

Except, I can’t.

To look at me is to look at anyone else. Or is it? Click To Tweet

I share my life with a chronic illness.

Continue reading How to Work with Chronic Illness

Living with Dysautonomia and EDS – Chapter 13 “My Top 10 Countdown”

“My top 10 countdown for living with dysautonomia and EDS”

It’s been a few years since things went awry with this body of mine.  I’ve now got myself to a much better place but it’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and EDS!

So here are the “hits” for your enjoyment…

Continue reading Living with Dysautonomia and EDS – Chapter 13 “My Top 10 Countdown”

Living with Dysautonomia and EDS – Chapter 12 “How to Manage Panic Attacks”

One of the symptoms of living with dysautonomia is so-called panic attacks.  Here’s “How to Manage Panic Attacks without Panicking!”

40% of people deal with panic attacks at some point in their life and often in silence.

I think it’s time we lifted the lid and talked about how to manage panic attacks, what they feel like and what can cause them. Continue reading Living with Dysautonomia and EDS – Chapter 12 “How to Manage Panic Attacks”

How to Get a New Life – Chapter 9 “What it Means to be Authentic”

Your self worth hinges on your ability to be you. So what does it mean to be authentic?

“Authenticity is a collection of choices that we have to make every day. It’s about the choice to show up and be real. The choice to be honest. The choice to let our true selves be seen.” Brene Brown

Continue reading How to Get a New Life – Chapter 9 “What it Means to be Authentic”

How to Get a New Life – Chapter 8 “Finding Your Purpose”

Finding your purpose is crucial to living a better life. Here’s why…

Are you an aimless wanderer in life? Do you ever wonder what you’re meant to be doing with your life? If you feel like you’ve lost your way, then perhaps it’s time you thought about finding your purpose.

Purpose: ‘the reason for which something exists’

What’s all the fuss about purpose?

‘Many persons have a wrong idea of what constitutes true happiness. It is not attained through self-gratification but through fidelity to a worthy purpose’ Helen Keller

Continue reading How to Get a New Life – Chapter 8 “Finding Your Purpose”

Exercising with Dysautonomia – Part 3 – “Cardio is too Hardio”

My trials and tribulations of exercising with dysautonomia!

If you’re living with dysautonomia, you’ve probably been told to exercise to improve your predicament. However, it doesn’t always work out that way.  Here’s my story of why I found exercising with dysautonomia hard.

Previous Spesh set me on a routine of daily cardio to grow my blood volume and recondition me and my muscles back to health.  At least, that was the plan.

Here’s a bit of before and after of what has resulted: Continue reading Exercising with Dysautonomia – Part 3 – “Cardio is too Hardio”

Do I have Ehlers Danlos Syndrome (EDS)?

Dizzy? Clumsy? Bruise easily?  Joint pain? Feel faint? Get tired a lot?  Feel anxious?

You might have Ehlers Danlos Syndrome (Hypermobile Type) or hypermobility – a genetic connective tissue disorder.

Continue reading Do I have Ehlers Danlos Syndrome (EDS)?