Tag Archives: Orthostatic Intolerance

Stories about living with orthostatic intolerance

Up and down like a yoyo

After 4 months on Florinef we decided to part company.  The last month has been too hard – too many headaches, too much fatigue and a blood pressure that was a little high for Spesh’s liking.  So I’m now week two, another two to go before we possibly try Midodrine, and it’s turning out to be a bloody nightmare.  Mad swings from high to low blood pressure giving me all sorts of grief.  Within one day last week I was fluctuating between 85/65 and 150/110. Continue reading Up and down like a yoyo

The poo truck

My wham bam health issues appeared in November 2014. However, looking back, before my ‘tsunami’ of symptoms hit, a slow trickle of odd symptoms had appeared.  I’d been under quite a bit of stress from a job for a period of 6 months and I had a few odd, isolated bodily symptoms occur (which I can now recognise as the early warning signs).  I had weird aches in my hands, I was thirstier than normal, I was wired and tired, I got the shakes when under pressure and I started getting weird nightmares on top of insomnia (Dennis the Menace flying spider kind of nightmares).  I then experienced the ‘oh god I feel shit I must be unfit’ after pilates (come on?) and I had my first proper almighty panic attack (an ambulance job).  But many of these were simply explained away as stress related reactions.

Then I sealed my fate by visiting some hot springs for the day in late November 2014.  Continue reading The poo truck

Pushing through fatigue

I just watched a really informative video by Dr Alan Pocinki who specializes in treating patients with Ehlers Danlos Syndrome (link here). Whilst it is specific to EDS and people who have hypermobility the themes in here are very relevant to anyone who suffers from fatigue so read on… Continue reading Pushing through fatigue

Adrenaline impacts your body in good and bad ways. Here’s how.

Are you running around on adrenaline, much like ‘roadrunner’ just running non stop?

Following my own rather large run in with adrenaline and the diagnosis of having dysautonomia and being hyperadrenergic (a-dren-err-gic – I still have problems saying it) I’ve become somewhat interested in the role it plays on the body and thought I would share some of what I know.  So here goes…. Continue reading Adrenaline impacts your body in good and bad ways. Here’s how.