Tag Archives: Orthostatic Intolerance

Stories about living with orthostatic intolerance

How to manage panic attacks without panicking!

40% of people deal with panic attacks at some point in their life and often in silence.

I think it’s time we lifted the lid and talked about how to manage panic attacks, what they feel like and what can cause them. Continue reading How to manage panic attacks without panicking!

Rachel Gorman: Living well with chronic illness

Living well with chronic illness… How acupuncture, Chinese medicine and Yoga can change your life…

Rachel Gorman was diagnosed with idiopathic POTS, fibromyalgia, gastroparesis, Hashimoto’s thyroiditis and a multitude of other ‘opathies over a 4 year period from 2012 to 2016.

Continue reading Rachel Gorman: Living well with chronic illness

Why exercise with dysautonomia is hard

If you’re living with dysautonomia, you’ve probably been told to exercise to improve your predicament. However, it doesn’t always work out that way. Here’s my story of why exercise with dysautonomia is hard.

Previous Spesh set me on a routine of daily cardio to grow my blood volume and recondition me and my muscles back to health.  At least, that was the plan.

Here’s a bit of before and after of what has resulted: Continue reading Why exercise with dysautonomia is hard

My recovery plan for living with dysautonomia

Living with dysautonomia has been a massive rollercoaster.

The downs have been many but I wouldn’t have made it through the last two years without the ups.

The ups are simply those gorgeous people around me who have helped keep me sane and to feel cared for.  Numero uno, my husband (who does just about everything there is to do around here), then there are my children (for forever giving me something to laugh about and for just loving their mum), my family (for being there during the tough times and helping me in whatever way I needed it) and, finally, my friends (the rock stars who have stuck by me and not put me in the ‘too hard’ basket).

This last year has also been about developing what I’ve now called my Goldilocks recovery plan.  So named because quite simply it’s been about finding out what’s ‘just right’ for me.  There has been much trial and error!

This last year has been about developing what I've now called my Goldilocks recovery plan. Click To Tweet

Here’s the list of my do’s and don’ts which hopefully should help others suffering from dysautonomia. Continue reading My recovery plan for living with dysautonomia

How I found out I had neurally mediated hypotension

When things went wrong 18 months ago, it felt like a malfunction, like the machine went wrong or like the accelerator got left in the on position.  Well yesterday I got validation this is indeed correct.  It’s called neurally mediated hypotension. Continue reading How I found out I had neurally mediated hypotension

The disorder you and your gp may not know you have

Dizzy? Clumsy? Bruise easily?  Joint pain? Feel faint? Get tired a lot?  Feel anxious?

Hypermobility – a genetic connective tissue disorder – might be just the reason you feel the way you do! Continue reading The disorder you and your gp may not know you have

The perpetual cyclist

What is it with tourists?

As I was cycling along today (which I am meant to do everyday – hmm subject of another post) the inevitable happened.  A nice looking couple, obviously from my home country England, judging by the accents, decided to ask me for directions to the beach.  Me – who obviously just looks like I’m out for a morning meander on my cruiser bike rather than the huffing, puffing lard arse that I was feeling.   Continue reading The perpetual cyclist