Spoonies I’m in some strife and I need your help with my pacing strategies.
This is your call to action….. (Everyone else, strange ‘spoonie’ and ‘spoon’ references will become clearer….)
Life these last few weeks has been ridiculous. This crazy, stupid, mad woman has been cramming just too much in. My pacing strategies have gone completely out the window. And for what? To try and earn some god damn money. Damn it. Continue reading I can’t spoon for toffee… say what?
I am a mother. I am a wife. I am a freelance consultant. I am actually quite a lot of bloody stuff. Now with a health doo dah thrown in.
As I continue to understand this thing I have, I continue to make strides (in a somewhat haphazard way) to battle against the old expectations of myself and to carve out the new me. Whatever that is. This week was another one of those weeks where I continued to make progress in rewriting my book of life…specifically my work life.
It was another one of those ‘old expectations’ weeks. The ‘old chestnut’ that pops up a lot. Continue reading Why breakfast events are history
Frustrated. Angry. Disappointed. Bloody over it.
Woke up this morning not in the best mood (can you tell?). Too many expletives to mention exited my mouth. Husband has slunk off to a quieter place. Though he did make me a cup of tea first. All because of my invisible illness. Continue reading Dealing with the invisible
Living with dysautonomia has been a massive rollercoaster.
The downs have been many but I wouldn’t have made it through the last two years without the ups.
The ups are simply those gorgeous people around me who have helped keep me sane and to feel cared for. Numero uno, my husband (who does just about everything there is to do around here), then there are my children (for forever giving me something to laugh about and for just loving their mum), my family (for being there during the tough times and helping me in whatever way I needed it) and, finally, my friends (the rock stars who have stuck by me and not put me in the ‘too hard’ basket).
This last year has also been about developing what I’ve now called my Goldilocks recovery plan. So named because quite simply it’s been about finding out what’s ‘just right’ for me. There has been much trial and error!
Here’s the list of my do’s and don’ts which hopefully should help others suffering from dysautonomia. Continue reading My “Goldilocks” recovery plan for living with dysautonomia
One of things I’ve been forced to do with this thing I have is slow down.
A hard ask for someone who has spent all her life on the go, applying herself with gusto to just about anything and everything.
Unbeknowns to me I had literally been living my life on adrenaline – I loved being busy, always been like it, never knew anything different, until now.
When things went wrong 18 months ago, it felt like a malfunction, like the machine went wrong or like the accelerator got left in the on position. Well yesterday I got validation this is indeed correct. It’s called neurally mediated hypotension. Da dah! Continue reading How I found out I had neurally mediated hypotension
A gorgeous coaching mentor read this poem out loud on a Teleclass I was doing. It really resonated with me given I have my own version of an unwanted house guest that forced me to change my life and slow down. Take a moment to read it: Continue reading Is your ‘unwanted house guest’ leading you to a new life?