Tag Archives: featured

I can’t spoon for toffee

Spoonies I’m in some strife and I need your help with my pacing strategies.

This is your call to action….. (Everyone else, strange ‘spoonie’ and ‘spoon’ references will become clearer….)

Life these last few weeks has been ridiculous.  This crazy, stupid, mad woman has been cramming just too much in.  My pacing strategies have gone completely out the window.  And for what? To try and earn some god damn money.  Damn it. Continue reading I can’t spoon for toffee

Getting a diagnosis should not be this hard, should it?

OK I’ve been saving this one up. Stewing on it and cooking up my mad woman.

Hence attached photo of angry woman – she is how I feel on the topic to come.   I make no apology for the length of this post, it’s reflective of the time it’s taken me to get the correct diagnosis of Ehlers Danlos Syndrome…

Prepare yourselves, especially if you’re a general practitioner/physician…. Continue reading Getting a diagnosis should not be this hard, should it?

Dealing with the invisible

Frustrated.  Angry.  Disappointed.  Bloody over it.

Woke up this morning not in the best mood (can you tell?).  Too many expletives to mention exited my mouth.  Husband has slunk off to a quieter place.  Though he did make me a cup of tea first.  All because of my invisible illness.  Continue reading Dealing with the invisible

The disorder you and your gp may not know you have

Dizzy? Clumsy? Bruise easily?  Joint pain? Feel faint? Get tired a lot?  Feel anxious?

Hypermobility – a genetic connective tissue disorder – might be just the reason you feel the way you do! Continue reading The disorder you and your gp may not know you have

Is your ‘unwanted house guest’ leading you to a new life?

A gorgeous coaching mentor read this poem out loud on a Teleclass I was doing.  It really resonated with me given I have my own version of an unwanted house guest that forced me to change my life and slow down.  Take a moment to read it: Continue reading Is your ‘unwanted house guest’ leading you to a new life?

The poo truck

My wham bam health issues appeared in November 2014. However, looking back, before my ‘tsunami’ of symptoms hit, a slow trickle of odd symptoms had appeared.  I’d been under quite a bit of stress from a job for a period of 6 months and I had a few odd, isolated bodily symptoms occur (which I can now recognise as the early warning signs).  I had weird aches in my hands, I was thirstier than normal, I was wired and tired, I got the shakes when under pressure and I started getting weird nightmares on top of insomnia (Dennis the Menace flying spider kind of nightmares).  I then experienced the ‘oh god I feel shit I must be unfit’ after pilates (come on?) and I had my first proper almighty panic attack (an ambulance job).  But many of these were simply explained away as stress related reactions.

Then I sealed my fate by visiting some hot springs for the day in late November 2014.  Continue reading The poo truck

Adrenaline impacts your body in good and bad ways. Here’s how.

Are you running around on adrenaline, much like ‘roadrunner’ just running non stop?

Following my own rather large run in with adrenaline and the diagnosis of having dysautonomia and being hyperadrenergic (a-dren-err-gic – I still have problems saying it) I’ve become somewhat interested in the role it plays on the body and thought I would share some of what I know.  So here goes…. Continue reading Adrenaline impacts your body in good and bad ways. Here’s how.