Fuck. It. Here goes.
I’ve been sitting, pondering about officially launching this blog for months. A contact of mine said “dude, press go, what have you got to lose?” The truth is very little. I’ve been holding off going public with reams of diary entries I have written over the last 6 months worrying about how this will affect the work I’ve been doing and thinking by some miracle my condition will pass. Maybe it still will. I didn’t want to look like a fraud (you know I might roll over one day and be restored back to the manufacturer’s settings??) but realistically I’ve been fooling myself thinking, at this point, that I can resume a “normal” working life. Whatever that is anymore. Dream on. My work has been suffering anyway. In fact I’m having to completely rethink it.
I just watched a really informative video by Dr Alan Pocinki who specializes in treating patients with Ehlers Danlos Syndrome (link here). Whilst it is specific to EDS and people who have hypermobility the themes in here are very relevant to anyone who suffers from fatigue so read on… Continue reading Pushing through fatigue
Yup you guessed it, another adrenaline attack. God it’s a pain in the neck. My meds were changed 3 weeks ago because of adrenaline issues, I had reduced my meetings and the intensity of my exercise program and was doing really well.
Then I changed something. Moved my usual morning exercise to the evening last night, evidently when the impact of my glory wonder drugs were at their lowest, and had a sleep from hell. Continue reading Supercharged out of my head