If you’re living with dysautonomia, you’ve probably been told to exercise to improve your predicament. However, it doesn’t always work out that way. Here’s my story of why exercise with dysautonomia is hard.
Previous Spesh set me on a routine of daily cardio to grow my blood volume and recondition me and my muscles back to health. At least, that was the plan.
Here’s a bit of before and after of what has resulted: Continue reading Why exercise with dysautonomia is hard
This is me. The dreamer. The hungover. The fatigued. Daily specials on my menu of life. Here’s a taste…
Every morning, to varying degrees depending on how busy my day was previously, I wake in a fog. A pea soup kind of fog. Feeling like I’ve been somewhere half the night.
In another mad dream. With people I don’t know, writing the story as I go. Continue reading My daily specials of dreams, hangovers and fatigue
A tale of attempting silence by non verbal cues in my house… (Anyone that knows my house will know where this is going…)
Talking and laughing, the things that we all take for granted, are the things that I can no longer do a great deal of. Which is a complete shit because, hey, who doesn’t like doing those things? It’s called fun, right?
Continue reading The rise and fall of the red card
Adrenaline, my adrenergic tendencies and I have become very acquainted. It’s my side kick in life.
It’s a bit like your favourite tipple at the pub when someone asks ‘what’s your poison?’. You lap it up at the time but suffer from the effects of it big time when you’ve done it to excess. And having had to live with the excess side of things since 2014, when my body just went completely haywire, I’ve become quite knowledgeable about its impact.
Continue reading What happens when adrenaline is your poison
Spoonies I’m in some strife and I need your help with my pacing strategies.
This is your call to action….. (Everyone else, strange ‘spoonie’ and ‘spoon’ references will become clearer….)
Life these last few weeks has been ridiculous. This crazy, stupid, mad woman has been cramming just too much in. My pacing strategies have gone completely out the window. And for what? To try and earn some god damn money. Damn it. Continue reading I can’t spoon for toffee… say what?
Do you unknowingly have a form of dysautonomia?
It can affect you at any age and there are many reasons it can present itself. Perhaps your doctors haven’t been able to put their finger on what’s wrong or you still feel something is amiss? Could it be POTS?
The following article about a young man and his journey to get diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) will provide some interesting insight into what this form of dysautonomia is and how, to the untrained eye, it can be missed. Continue reading Exhausted all the time? Nauseous? Dizzy? Shaky? Could it be POTS – a type of Dysautonomia?
When things went wrong 18 months ago, it felt like a malfunction, like the machine went wrong or like the accelerator got left in the on position. Well yesterday I got validation this is indeed correct. It’s called neurally mediated hypotension. Da dah! Continue reading How I found out I had neurally mediated hypotension