Tag Archives: Fatigue

Stories about fatigue symptoms for those with dysautonomia, Ehlers Danlos Syndrome, a chronic health condition or anyone else taking life too fast

Donna Grant: Living well with chronic illness

This week, I would like to introduce you to Donna Grant who lives with Fibromyalgia and Chronic Lyme Disease and writes about her experiences on her February Stars blog.  Here she talks about her experiences and living well with her chronic illness.

Continue reading Donna Grant: Living well with chronic illness

Nikki Albert: Living well with chronic illness

This week, I would like to introduce you to Nikki Albert who runs the brainlessblogger blog.  Nikki manages chronic migraines, fibromyalgia and major depressive disorder.  Here’s her frank and insightful account of her story.

Continue reading Nikki Albert: Living well with chronic illness

Charlotte Wells: Living well with chronic illness

This week, I would like you to meet Charlotte Wells from charlottedebs.com.  Charlotte has been diagnosed with fibromyalgia, chronic pain. ME/CFS and Myoclonic Seizures. She talks here about how she does her best to live as well as she can with her chronic illnesses.

Continue reading Charlotte Wells: Living well with chronic illness

How I accepted my new normal

That.  Is.  It.  I’m out.

In April 2016, I had been sitting, pondering about officially launching this blog for months.  A contact of mine encouraged me to just do it… “dude, press go, what have you got to lose?” The truth was I had very very little to lose.  I had been holding off going public with reams of diary entries I had written over the preceding 6 months worrying about how it would affect the work I’d been doing.  Thinking by some miracle my condition would pass.  I didn’t want to look like a fraud (you know I might roll over one day and be restored back to the manufacturer’s settings??) but realistically I had been fooling myself thinking, at that point, that I could resume  a “normal” working life.  Whatever that was anymore.  Dream on. My work had been suffering anyway.  In fact, I had to completely rethink it.

A new normal was required. Continue reading How I accepted my new normal

Kayla Kurin: Living well with chronic illness

I’ve been meaning to write about Kayla for some time. We connected a few months back but it’s taken me some time to sit down and do her justice! Kayla has lived with Chronic Fatigue Syndrome (CFS)/ME since she was 12 years old. Continue reading Kayla Kurin: Living well with chronic illness

Are you living on adrenaline?

Are you running around on adrenaline, much like ‘roadrunner’ just running non stop?

Following my own rather large run in with adrenaline and the diagnosis of having dysautonomia and being hyperadrenergic (a-dren-err-gic – I still have problems saying it) I’ve become somewhat interested in the role it plays on the body and thought I would share some of what I know.  So here goes…. Continue reading Are you living on adrenaline?

My top 10 countdown for living with dysautonomia and EDS

Three years after things went awry with this body of mine, I’ve now got myself to a much better place.  It’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was about time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and Ehlers Danlos Syndrome (Hypermobility Type)!

So here are the “hits” for your enjoyment…

Continue reading My top 10 countdown for living with dysautonomia and EDS