Tag Archives: Fatigue

Stories about fatigue symptoms for those with dysautonomia, Ehlers Danlos Syndrome, a chronic health condition or anyone else taking life too fast

How I accepted my new normal

That.  Is.  It.  I’m out.

In April 2016, I had been sitting, pondering about officially launching this blog for months.  A contact of mine encouraged me to just do it… “dude, press go, what have you got to lose?” The truth was I had very very little to lose.  I had been holding off going public with reams of diary entries I had written over the preceding 6 months worrying about how it would affect the work I’d been doing.  Thinking by some miracle my condition would pass.  I didn’t want to look like a fraud (you know I might roll over one day and be restored back to the manufacturer’s settings??) but realistically I had been fooling myself thinking, at that point, that I could resume  a “normal” working life.  Whatever that was anymore.  Dream on. My work had been suffering anyway.  In fact, I had to completely rethink it.

A new normal was required. Continue reading How I accepted my new normal

Kayla Kurin: Living well with chronic illness

I’ve been meaning to write about Kayla for some time. We connected a few months back but it’s taken me some time to sit down and do her justice! Kayla has lived with Chronic Fatigue Syndrome (CFS)/ME since she was 12 years old. Continue reading Kayla Kurin: Living well with chronic illness

Are you living on adrenaline?

Are you running around on adrenaline, much like ‘roadrunner’ just running non stop?

Following my own rather large run in with adrenaline and the diagnosis of having dysautonomia and being hyperadrenergic (a-dren-err-gic – I still have problems saying it) I’ve become somewhat interested in the role it plays on the body and thought I would share some of what I know.  So here goes…. Continue reading Are you living on adrenaline?

My top 10 countdown for living with dysautonomia and EDS

Three years after things went awry with this body of mine, I’ve now got myself to a much better place.  It’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was about time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and Ehlers Danlos Syndrome (Hypermobility Type)!

So here are the “hits” for your enjoyment…

Continue reading My top 10 countdown for living with dysautonomia and EDS

Shawn Bethea: Living well with chronic illness

Please welcome Shawn Bethea to the Living Well series!

Shawn suffers from Ulcerative Colitis and has lived with it for pretty much all her young life (she first started getting sick when she was around 11 years old).

Continue reading Shawn Bethea: Living well with chronic illness

Julie Ryan: Living well with chronic illness

This week I am extremely excited to introduce Julie Ryan to you, who is living well with chronic illness. For those that don’t know, the Chronic Illness Bloggers Network is the brainchild of Julie, intended to connect bloggers and businesses in the chronic illness community for mutual benefit. Julie also has her own blog called Counting My Spoons.

Continue reading Julie Ryan: Living well with chronic illness

Linda: Living well with chronic illness

My last post in this new series about living well with chronic illness was about Brittany and her love of coffee. This week I would like to introduce Linda, another chronic illness blogger, who lives in a most beautiful part of the world and gets to work with my favourite sweet treat – chocolate!

Life with ME/CFS and Fibromyalgia

Continue reading Linda: Living well with chronic illness