Three years after things went awry with this body of mine, I’ve now got myself to a much better place. It’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was about time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and Ehlers Danlos Syndrome (Hypermobility Type)!
So here are the “hits” for your enjoyment…
Continue reading My top 10 countdown for living with dysautonomia and EDS
Please welcome Shawn Bethea to the Living Well series!
Shawn suffers from Ulcerative Colitis and has lived with it for pretty much all her young life (she first started getting sick when she was around 11 years old).
Continue reading Shawn Bethea: Living well with chronic illness
This week I am extremely excited to introduce Julie Ryan to you, who is living well with chronic illness. For those that don’t know, the Chronic Illness Bloggers Network is the brainchild of Julie, intended to connect bloggers and businesses in the chronic illness community for mutual benefit. Julie also has her own blog called Counting My Spoons.
My last post in this new series about living well with chronic illness was about Brittany and her love of coffee. This week I would like to introduce Linda, another chronic illness blogger, who lives in a most beautiful part of the world and gets to work with my favourite sweet treat – chocolate!
Life with ME/CFS and Fibromyalgia
Continue reading Linda: Living well with chronic illness
If you’re living with dysautonomia, you’ve probably been told to exercise to improve your predicament. However, it doesn’t always work out that way. Here’s my story of why exercise with dysautonomia is hard.
Previous Spesh set me on a routine of daily cardio to grow my blood volume and recondition me and my muscles back to health. At least, that was the plan.
Here’s a bit of before and after of what has resulted: Continue reading Why exercise with dysautonomia is hard
This is me. The dreamer. The hungover. The fatigued. Daily specials on my menu of life. Here’s a taste…
Every morning, to varying degrees depending on how busy my day was previously, I wake in a fog. A pea soup kind of fog. Feeling like I’ve been somewhere half the night.
In another mad dream. With people I don’t know, writing the story as I go. Continue reading My daily specials of dreams, hangovers and fatigue
A tale of attempting silence by non verbal cues in my house… (Anyone that knows my house will know where this is going…)
Talking and laughing, the things that we all take for granted, are the things that I can no longer do a great deal of. Which is a complete shit because, hey, who doesn’t like doing those things? It’s called fun, right?
Continue reading The rise and fall of the red card