Living with dysautonomia has been a massive rollercoaster.
The downs have been many but I wouldn’t have made it through the last two years without the ups.
The ups are simply those gorgeous people around me who have helped keep me sane and to feel cared for. Numero uno, my husband (who does just about everything there is to do around here), then there are my children (for forever giving me something to laugh about and for just loving their mum), my family (for being there during the tough times and helping me in whatever way I needed it) and, finally, my friends (the rock stars who have stuck by me and not put me in the ‘too hard’ basket).
This last year has also been about developing what I’ve now called my Goldilocks recovery plan. So named because quite simply it’s been about finding out what’s ‘just right’ for me. There has been much trial and error!
Here’s the list of my do’s and don’ts which hopefully should help others suffering from dysautonomia. Continue reading My “Goldilocks” recovery plan for living with dysautonomia
After ditching cardio for 3 weeks to try to allow this body to calm down (with mixed and not very successful results I have to say), I resolved to do SOMETHING. After all the pain my bloody leg muscles went through in Sept and Oct when I restarted exercise I can’t put myself in a position where I have to go through that again. Continue reading Bite sized cardio
What is it with tourists?
As I was cycling along today (which I am meant to do everyday – hmm subject of another post) the inevitable happened. A nice looking couple, obviously from my home country England, judging by the accents, decided to ask me for directions to the beach. Me – who obviously just looks like I’m out for a morning meander on my cruiser bike rather than the huffing, puffing lard arse that I was feeling. Continue reading The perpetual cyclist
My wham bam health issues appeared in November 2014. However, looking back, before my ‘tsunami’ of symptoms hit, a slow trickle of odd symptoms had appeared. I’d been under quite a bit of stress from a job for a period of 6 months and I had a few odd, isolated bodily symptoms occur (which I can now recognise as the early warning signs). I had weird aches in my hands, I was thirstier than normal, I was wired and tired, I got the shakes when under pressure and I started getting weird nightmares on top of insomnia (Dennis the Menace flying spider kind of nightmares). I then experienced the ‘oh god I feel shit I must be unfit’ after pilates (come on?) and I had my first proper almighty so-called panic attack (an ambulance job). But many of these were simply explained away as stress related reactions.
Then I sealed my fate by visiting some hot springs for the day in late November 2014. Continue reading The poo truck
Yup you guessed it, another adrenaline attack. God it’s a pain in the neck. My meds were changed 3 weeks ago because of adrenaline issues, I had reduced my meetings and the intensity of my exercise program and was doing really well.
Then I changed something. Moved my usual morning exercise to the evening last night, evidently when the impact of my glory wonder drugs were at their lowest, and had a sleep from hell. Continue reading Supercharged out of my head
OK big sigh. My old friend ‘adrenaline’ has been making quite a reappearance lately. Gotta love it (not).
Whilst a regime of exercise daily for the last two months has given me a lift and lured me towards a bit more activity (meetings, lunches etc) it’s become a little bit of my undoing. Think I mentioned the ‘evil’ side of adrenaline before….well mine has not been behaving at all well these last couple of weeks and I’m now back in the space of the jitters, chest flutters (actually that’s kind, it’s more like racing), sailing high blood pressure, knock out headaches and sheer bloody frustration. Continue reading One totally frustrated punter