Tag Archives: Ehlers Danlos Syndrome

Stories about Ehlers Danlos Syndrome (Hypermobility Type)

Are you living on adrenaline?

Are you running around on adrenaline, much like ‘roadrunner’ just running non stop?

Following my own rather large run in with adrenaline and the diagnosis of having dysautonomia and being hyperadrenergic (a-dren-err-gic – I still have problems saying it) I’ve become somewhat interested in the role it plays on the body and thought I would share some of what I know.  So here goes…. Continue reading Are you living on adrenaline?

Cheyanne: Living well with chronic illness

This week I would like to welcome Cheyanne from Hospitalprincess.com to the Living Well with Chronic Illness series.

Cheyanne has Ehlers Danlos Syndrome Type 3, Mast Cell Disease, Dysautonomia/Postural Orthostatic Tachycardia Syndrome (POTS), Gastroparesis, and Fibromyalgia. The Ehlers Danlos Syndrome is primary, while the others are secondary. The diagnosis that interferes with her life the most is Mast Cell Disease.

Continue reading Cheyanne: Living well with chronic illness

My top 10 countdown for living with dysautonomia and EDS

Three years after things went awry with this body of mine, I’ve now got myself to a much better place.  It’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was about time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and Ehlers Danlos Syndrome (Hypermobility Type)!

So here are the “hits” for your enjoyment…

Continue reading My top 10 countdown for living with dysautonomia and EDS

Why exercise with dysautonomia is hard

If you’re living with dysautonomia, you’ve probably been told to exercise to improve your predicament. However, it doesn’t always work out that way. Here’s my story of why exercise with dysautonomia is hard.

Previous Spesh set me on a routine of daily cardio to grow my blood volume and recondition me and my muscles back to health.  At least, that was the plan.

Here’s a bit of before and after of what has resulted: Continue reading Why exercise with dysautonomia is hard

Brittany Wattenbarger: Living well with chronic illness

One of the things I aim to do with this website is offer inspiration to others faced with illness in living their lives as best they can.

This is the first article in a series of feature posts called “Living Well with Chronic Illness” and I am extremely pleased to introduce Brittany Wattenbarger, of A Southern Celiac, as my first guest.  Drum roll please… Continue reading Brittany Wattenbarger: Living well with chronic illness

Getting a diagnosis should not be this hard, should it?

OK I’ve been saving this one up. Stewing on it and cooking up my mad woman.

Hence attached photo of angry woman – she is how I feel on the topic to come.   I make no apology for the length of this post, it’s reflective of the time it’s taken me to get the correct diagnosis of Ehlers Danlos Syndrome…

Prepare yourselves, especially if you’re a general practitioner/physician…. Continue reading Getting a diagnosis should not be this hard, should it?

The disorder you and your gp may not know you have

Dizzy? Clumsy? Bruise easily?  Joint pain? Feel faint? Get tired a lot?  Feel anxious?

Hypermobility – a genetic connective tissue disorder – might be just the reason you feel the way you do! Continue reading The disorder you and your gp may not know you have