Tag Archives: Dysautonomia

Stories about living with dysautonomia and the symptoms of dysautonomia

How I accepted my new normal

That.  Is.  It.  I’m out.

In April 2016, I had been sitting, pondering about officially launching this blog for months.  A contact of mine encouraged me to just do it… “dude, press go, what have you got to lose?” The truth was I had very very little to lose.  I had been holding off going public with reams of diary entries I had written over the preceding 6 months worrying about how it would affect the work I’d been doing.  Thinking by some miracle my condition would pass.  I didn’t want to look like a fraud (you know I might roll over one day and be restored back to the manufacturer’s settings??) but realistically I had been fooling myself thinking, at that point, that I could resume  a “normal” working life.  Whatever that was anymore.  Dream on. My work had been suffering anyway.  In fact, I had to completely rethink it.

A new normal was required. Continue reading How I accepted my new normal

My last flutter with too much fun

This week is an anniversary of sorts.

An anniversary of sorts that coincides with a famous horse race, The Melbourne Cup.

It marks the time I last skipped in front of the TV!

Here’s an update from that memorable day in November 2015….

Continue reading My last flutter with too much fun

Are you living on adrenaline?

Are you running around on adrenaline, much like ‘roadrunner’ just running non stop?

Following my own rather large run in with adrenaline and the diagnosis of having dysautonomia and being hyperadrenergic (a-dren-err-gic – I still have problems saying it) I’ve become somewhat interested in the role it plays on the body and thought I would share some of what I know.  So here goes…. Continue reading Are you living on adrenaline?

Cheyanne: Living well with chronic illness

This week I would like to welcome Cheyanne from Hospitalprincess.com to the Living Well with Chronic Illness series.

Cheyanne has Ehlers Danlos Syndrome Type 3, Mast Cell Disease, Dysautonomia/Postural Orthostatic Tachycardia Syndrome (POTS), Gastroparesis, and Fibromyalgia. The Ehlers Danlos Syndrome is primary, while the others are secondary. The diagnosis that interferes with her life the most is Mast Cell Disease.

Continue reading Cheyanne: Living well with chronic illness

My top 10 countdown for living with dysautonomia and EDS

Three years after things went awry with this body of mine, I’ve now got myself to a much better place.  It’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was about time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and Ehlers Danlos Syndrome (Hypermobility Type)!

So here are the “hits” for your enjoyment…

Continue reading My top 10 countdown for living with dysautonomia and EDS

How to manage panic attacks without panicking!

40% of people deal with panic attacks at some point in their life and often in silence.

I think it’s time we lifted the lid and talked about how to manage panic attacks, what they feel like and what can cause them. Continue reading How to manage panic attacks without panicking!

Rachel Gorman: Living well with chronic illness

Living well with chronic illness… How acupuncture, Chinese medicine and Yoga can change your life…

Rachel Gorman was diagnosed with idiopathic POTS, fibromyalgia, gastroparesis, Hashimoto’s thyroiditis and a multitude of other ‘opathies over a 4 year period from 2012 to 2016.

Continue reading Rachel Gorman: Living well with chronic illness