Tag Archives: Blood Pressure

Stories about blood pressure symptoms for those with dysautonomia or anyone else taking life too fast

How I found out I had neurally mediated hypotension

When things went wrong 18 months ago, it felt like a malfunction, like the machine went wrong or like the accelerator got left in the on position.  Well yesterday I got validation this is indeed correct.  It’s called neurally mediated hypotension. Da dah! Continue reading How I found out I had neurally mediated hypotension

Grog the head

A friend of mine who made a daily appearance for 6 months, stopped for 2 months and has now come back again is Grog, as I have now named him (aka bear with a sore head).  When he’s in full swing he’s like the hangover (with full on banging migraines) that won’t go away and, over the last 12 months, has become a pretty consistent member of my crew.  It seems it’s all part of the delightful bag of tricks this weird condition brings. Continue reading Grog the head

Meditating like a mad woman!

If you had asked me two years ago what I thought about meditation, you would have got a scoff, a sniff and even perhaps an eyeball roll.

I had had some experience of trying it before but I often came out wondering what visualising, body scanning and breathing actually did for me (other than the obvious!!).

What I hadn’t appreciated was the calm I often felt during and after doing it.  Me thinks now my head was probably just buzzing a bit much for me to see the wood for the trees!! Continue reading Meditating like a mad woman!

Bite sized cardio

After ditching cardio for 3 weeks to try to allow this body to calm down (with mixed and not very successful results I have to say), I resolved to do SOMETHING. After all the pain my bloody leg muscles went through in Sept and Oct when I restarted exercise I can’t put myself in a position where I have to go through that again. Continue reading Bite sized cardio

The inaugural old nag post with **profanity warning**

Fuck.  It.  Here goes.

I’ve been sitting, pondering about officially launching this blog for months.  A contact of mine said “dude, press go, what have you got to lose?” The truth is very little.  I’ve been holding off going public with reams of diary entries I have written over the last 6 months worrying about how this will affect the work I’ve been doing and thinking by some miracle my condition will pass.  Maybe it still will.  I didn’t want to look like a fraud (you know I might roll over one day and be restored back to the manufacturer’s settings??) but realistically I’ve been fooling myself thinking, at this point, that I can resume  a “normal” working life.  Whatever that is anymore.  Dream on. My work has been suffering anyway.  In fact I’m having to completely rethink it.

I think I can safely say after all this time a new normal is required. Continue reading The inaugural old nag post with **profanity warning**

Up and down like a yoyo

After 4 months on Florinef we decided to part company.  The last month has been too hard – too many headaches, too much fatigue and a blood pressure that was a little high for Spesh’s liking.  So I’m now week two, another two to go before we possibly try Midodrine, and it’s turning out to be a bloody nightmare.  Mad swings from high to low blood pressure giving me all sorts of grief.  Within one day last week I was fluctuating between 85/65 and 150/110. Continue reading Up and down like a yoyo

The poo truck

My wham bam health issues appeared in November 2014. However, looking back, before my ‘tsunami’ of symptoms hit, a slow trickle of odd symptoms had appeared.  I’d been under quite a bit of stress from a job for a period of 6 months and I had a few odd, isolated bodily symptoms occur (which I can now recognise as the early warning signs).  I had weird aches in my hands, I was thirstier than normal, I was wired and tired, I got the shakes when under pressure and I started getting weird nightmares on top of insomnia (Dennis the Menace flying spider kind of nightmares).  I then experienced the ‘oh god I feel shit I must be unfit’ after pilates (come on?) and I had my first proper almighty so-called panic attack (an ambulance job).  But many of these were simply explained away as stress related reactions.

Then I sealed my fate by visiting some hot springs for the day in late November 2014.  Continue reading The poo truck