Living with dysautonomia has been a massive rollercoaster.
The downs have been many but I wouldn’t have made it through the last two years without the ups.
The ups are simply those gorgeous people around me who have helped keep me sane and to feel cared for. Numero uno, my husband (who does just about everything there is to do around here), then there are my children (for forever giving me something to laugh about and for just loving their mum), my family (for being there during the tough times and helping me in whatever way I needed it) and, finally, my friends (the rock stars who have stuck by me and not put me in the ‘too hard’ basket).
This last year has also been about developing what I’ve now called my Goldilocks recovery plan. So named because quite simply it’s been about finding out what’s ‘just right’ for me. There has been much trial and error!
Here’s the list of my do’s and don’ts which hopefully should help others suffering from dysautonomia. Continue reading My “Goldilocks” recovery plan for living with dysautonomia
One of things I’ve been forced to do with this thing I have is slow down.
A hard ask for someone who has spent all her life on the go, applying herself with gusto to just about anything and everything.
Unbeknowns to me I had literally been living my life on adrenaline – I loved being busy, always been like it, never knew anything different, until now.
When things went wrong 18 months ago, it felt like a malfunction, like the machine went wrong or like the accelerator got left in the on position. Well yesterday I got validation this is indeed correct. It’s called neurally mediated hypotension. Da dah! Continue reading How I found out I had neurally mediated hypotension
A gorgeous coaching mentor read this poem out loud on a Teleclass I was doing. It really resonated with me given I have my own version of an unwanted house guest that forced me to change my life and slow down. Take a moment to read it: Continue reading Is your ‘unwanted house guest’ leading you to a new life?
A friend of mine who made a daily appearance for 6 months, stopped for 2 months and has now come back again is Grog, as I have now named him (aka bear with a sore head). When he’s in full swing he’s like the hangover (with full on banging migraines) that won’t go away and, over the last 12 months, has become a pretty consistent member of my crew. It seems it’s all part of the delightful bag of tricks this weird condition brings. Continue reading Grog the head
If you had asked me two years ago what I thought about meditation, you would have got a scoff, a sniff and even perhaps an eyeball roll.
I had had some experience of trying it before but I often came out wondering what visualising, body scanning and breathing actually did for me (other than the obvious!!).
What I hadn’t appreciated was the calm I often felt during and after doing it. Me thinks now my head was probably just buzzing a bit much for me to see the wood for the trees!! Continue reading Meditating like a mad woman!