Three years after things went awry with this body of mine, I’ve now got myself to a much better place. It’s taken some effort to work out what’s worked and what hasn’t. So, I thought it was about time I took stock and wrote part II of my Goldilocks ‘just right’ plan in the form of my own top 10 countdown for living with dysautonomia and Ehlers Danlos Syndrome (Hypermobility Type)!
So here are the “hits” for your enjoyment…
Continue reading My top 10 countdown for living with dysautonomia and EDS
40% of people deal with panic attacks at some point in their life and often in silence.
I think it’s time we lifted the lid and talked about how to manage panic attacks, what they feel like and what can cause them. Continue reading How to manage panic attacks without panicking!
If you’re living with dysautonomia, you’ve probably been told to exercise to improve your predicament. However, it doesn’t always work out that way. Here’s my story of why exercise with dysautonomia is hard.
Previous Spesh set me on a routine of daily cardio to grow my blood volume and recondition me and my muscles back to health. At least, that was the plan.
Here’s a bit of before and after of what has resulted: Continue reading Why exercise with dysautonomia is hard
This is me. The dreamer. The hungover. The fatigued. Daily specials on my menu of life. Here’s a taste…
Every morning, to varying degrees depending on how busy my day was previously, I wake in a fog. A pea soup kind of fog. Feeling like I’ve been somewhere half the night.
In another mad dream. With people I don’t know, writing the story as I go. Continue reading My daily specials of dreams, hangovers and fatigue
A tale of attempting silence by non verbal cues in my house… (Anyone that knows my house will know where this is going…)
Talking and laughing, the things that we all take for granted, are the things that I can no longer do a great deal of. Which is a complete shit because, hey, who doesn’t like doing those things? It’s called fun, right?
Continue reading The rise and fall of the red card
Adrenaline, my adrenergic tendencies and I have become very acquainted. It’s my side kick in life.
It’s a bit like your favourite tipple at the pub when someone asks ‘what’s your poison?’. You lap it up at the time but suffer from the effects of it big time when you’ve done it to excess. And having had to live with the excess side of things since 2014, when my body just went completely haywire, I’ve become quite knowledgeable about its impact.
Continue reading What happens when adrenaline is your poison
Spoonies I’m in some strife and I need your help with my pacing strategies.
This is your call to action….. (Everyone else, strange ‘spoonie’ and ‘spoon’ references will become clearer….)
Life these last few weeks has been ridiculous. This crazy, stupid, mad woman has been cramming just too much in. My pacing strategies have gone completely out the window. And for what? To try and earn some god damn money. Damn it. Continue reading I can’t spoon for toffee… say what?